Calendar

Upcoming Events

FA Connect | Gene Therapy Clinical Trial Update

Feb 16th, 2022
FA Connect | Gene Therapy Clinical Trial Update

Learn more about the FA gene therapy clinical trial. Rocket Pharma will present the results to date from these trials and answer questions.

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FA Connect | Newly Diagnosed Families & Support Within the FA Community

Feb 19th, 2022
FA Connect | Newly Diagnosed Families & Support Within the FA Community

While this is not a family that you expected or ever dreamt of joining, we welcome you to process, reflect, learn, and walk with us along this journey. Facilitated by Nancy Cincotta.

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FA Connect | Bereavement Support for FA Parents, Caregivers & Siblings

Mar 19th, 2022
FA Connect | Bereavement Support for FA Parents, Caregivers & Siblings

This is an interactive session for adults and older teens whose beloved FA person has died. Facilitated by Rachel Altmann.

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FA Connect | Supporting the Others - Involving and Caring for the Children in Your Family Who Don’t Have FA

Apr 16th, 2022
FA Connect | Supporting the Others - Involving and Caring for the Children in Your Family Who Don’t Have FA

Learn more about how to support and involve the children in your life that don't have FA. Facilitated by Allison Breininger.

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FA Connect | Eltrombopag Clinical Trial Update

May 19th, 2022
FA Connect | Eltrombopag Clinical Trial Update

Join Dr. Andre Larochelle as he discusses the use of Eltrombopag for the treatment of bone marrow failure in Fanconi anemia.

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FA Connect | Bereavement Support for FA Parents, Caregivers & Siblings

May 21st, 2022
FA Connect | Bereavement Support for FA Parents, Caregivers & Siblings

This is an interactive session for adults and older teens whose beloved FA person has died. Facilitated by Rachel Altmann.

Learn More >