Website Privacy Policy
The Fanconi Anemia Research Fund [the Fund] respects the privacy of each individual who uses the Fund's website. To safeguard your privacy, we have adopted the following privacy policy:
Normal website usage:
The Fund has a strong commitment to internet privacy. You can visit all
portions of www.fanconi.org without revealing your identity or any personal
information.
Collection of personally identifiable information:
The Fanconi Anemia Research Fund may collect e-mail addresses and other
personally identifiable data about visitors when such data is voluntarily
submitted to www.fanconi.org. For example, our site may use information
collection forms for visitors to request information or to register for
the FA Annual Family Meeting or a particular conference. All such information
is collected and stored in a manner appropriate to the nature of the data.
Community Tools:
We provide space on our website for links to the personal websites of FA
families. These personal pages thus become public, and personal information
disclosed there will be seen by others. Exercise caution when posting information
or providing information about yourself to others, especially contact information,
such as street address, telephone number or email address.
Confidentiality of User Information:
The Fanconi Anemia Research Fund does not sell, exchange or otherwise disclose
user information outside the organization.
Cookies:
Like most websites, the Fanconi Anemia Research Fund may place a "cookie,"
or small file, in the browser files of a visitor's computer. Although we
have not yet used cookies, we may do so in the future to save information
you give us so you don't have to re-enter it each time you visit our site.
We do not use cookies to track your movement among different web sites and
do not exchange cookies with other entities.
Links to Other Sites:
Our site provides links to other web sites of relevance to Fanconi anemia.
The Fanconi Anemia Research Fund is not responsible for the actions of linked
sites. We encourage you to review the privacy policy of each site you visit.
Privacy Policy Changes:
We will post any changes to our privacy policy on this website.
Questions or Concerns:
If you have questions about the Fanconi Anemia Research Fund's website privacy
practices, feel free to contact us at info@fanconi.org.