Website Privacy Policy
The Fanconi Anemia Research Fund [the Fund] respects the privacy of each individual who uses the Fund's website. To safeguard your privacy, we have adopted the following privacy policy:
Normal website usage:
The Fund has a strong commitment to internet privacy. You can visit all portions
of www.fanconi.org without revealing your identity or any personal information.
Collection of personally identifiable information:
The Fanconi Anemia Research Fund may collect e-mail addresses and other personally
identifiable data about visitors when such data is voluntarily submitted to www.fanconi.org.
For example, our site may use information collection forms for visitors to request
information or to register for the FA Annual Family Meeting or a particular conference.
All such information is collected and stored in a manner appropriate to the nature
of the data.
Community Tools:
We provide
space on our website for links to the personal websites of FA families. These
personal pages thus become public, and personal information disclosed there will
be seen by others. Exercise caution when posting information or providing information
about yourself to others, especially contact information, such as street address,
telephone number or email address.
Confidentiality
of User Information:
The Fanconi Anemia Research Fund does not sell,
exchange or otherwise disclose user information outside the organization.
Cookies:
Like most websites, the Fanconi Anemia Research Fund may place a "cookie,"
or small file, in the browser files of a visitor's computer. Although we have
not yet used cookies, we may do so in the future to save information you give
us so you don't have to re-enter it each time you visit our site. We do not use
cookies to track your movement among different web sites and do not exchange cookies
with other entities.
Links to Other Sites:
Our site provides links to other web sites of relevance to Fanconi anemia. The
Fanconi Anemia Research Fund is not responsible for the actions of linked sites.
We encourage you to review the privacy policy of each site you visit.
Privacy
Policy Changes:
We will post any changes to our privacy policy on this
website.
Questions or Concerns:
If you
have questions about the Fanconi Anemia Research Fund's website privacy practices,
feel free to contact us at info@fanconi.org.