About Fanconi Anemia

What is Fanconi anemia? Rare. Complex. Genetic. Learn more about the FA diagnosis and disease itself.

Newly Diagnosed: If you’ve just received an FA diagnosis and have come across this website, you’ve come to the right place. We’re here to help you understand the diagnosis and what it means to live with FA.

Treatment: How is FA treated? Because it’s a disease that affects multiple systems of the body, there is no single answer to this question. Also, the type and severity of FA symptoms vary from person to person.

Relationship to Cancer: People with FA have a much greater risk of developing leukemia and other cancers than people without FA. That’s why FARF is funding research to better understand this connection, to detect and prevent cancers, and to find treatments.

Clinical Trials & Research Opportunities: New treatments and therapies for people with FA are not possible without research. There are many clinical trials and research opportunities available for people with FA. We encourage patients and families to consider participation.

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