Adults with FA

Meeting for Adults with FA: adults (18+) with FA are invited to attend this meeting each year to network with one another, listen to medical and science updates, and attend support sessions.>

Networking: a private Facebook support group allows adults with FA to exchange questions and information. An additional private Facebook support group is available to teens with FA.

Amy Winn & Christopher T. Byrd Award for Adults with FA: named for two adults with FA (and former FARF board members), this $5,000 award is available to adults with FA who set high goals and strive to make a difference.

The Latest

Sharing news, events, & inspiring stories

Get Involved

Help raise money to support our research

You know that warm, fuzzy feeling you get when you’ve done something important and good? We thrive on that. We also count on it: almost all of our funding is the result of individual donations and fundraising efforts. Whether it’s donating, creating your own fundraiser or supporting another, every single effort counts. How will you make a difference today?