What is the Family Meeting?
The Family Meeting is a unique event that allows families registered with FARF to attend presentations by researchers and physicians who are active in the research and treatment of Fanconi anemia (FA), to attend support groups for help in coping with the disease, to voluntarily participate in FA research projects, and to connect with other families affected by FA. Camp Sunshine volunteers provide a fun-filled program for children with FA and their siblings.
Camp Sunshine provides retreats combining respite, recreation, and support, while enabling hope and promoting joy, for children with life-threatening illnesses and their families through the various stages of a child’s illness. The program is free of charge to families and includes on-site medical and psychosocial support. Bereavement sessions are also offered for families who have experienced the death of a child. Learn more at http://www.campsunshine.org.
Anyone with FA and his/her family are welcome and invited to apply. People from all countries are welcome. Newly diagnosed families are especially encouraged to apply. There is no cost to attend other than travel expenses. Travel scholarships are available through FARF to assist with these expenses.