The Meeting for Adults with FA takes place every fall in a different city. It’s an opportunity for individuals with FA ages 18+ to meet other adults with FA, learn about medical and research updates, attend support sessions, and participate in voluntary research studies.
This meeting is held in conjunction with FARF’s annual Scientific Symposium. The 2019 Symposium will be September 19-22nd at the same hotel. Attendees from both meetings will be sharing meals together, including the annual Symposium banquet dinner. Adult Meeting attendees are welcome to attend Symposium sessions as well.
Aside from your travel expenses, there is no cost to attend this meeting. Lodging and meals are provided. FARF also has a scholarship program to help with travel expenses. Adults with FA may bring a guest (or guests) such as a friend, a support person, or a family member to the meeting, though one hotel room will be offered per family or group. FARF will reserve your room for you once your registration has been confirmed. Childcare is not offered at the meeting.
Registration for the 2019 meeting will be available in May.
Do not make travel arrangements until your registration has been confirmed by FARF.