Newly Diagnosed

We know that the Fanconi anemia diagnosis can be overwhelming. It’s a lot to digest. Please know that you are not alone. We’re here to help you understand what it means to live with FA and to connect you to the education and support services that will make this diagnosis a bit more manageable.

What is Fanconi Anemia?
Fanconi anemia (known as FA) is a complex disease that can affect every system of the body, and the severity of symptoms can differ widely from person to person. A diagnosis of FA has social, emotional, and financial impacts on the individual and family, as well. Being educated and supported throughout the process of diagnosis, and into treatment and management, is paramount to well-being and coping with a chronic disease.

Enroll with FARF Family Services
FARF offers a variety of services to assist those diagnosed and their families who register with us (at no cost). Fill out this form and our Family Services team will be in touch right away.

Get Support
You're not alone in navigating this diagnosis. Connect with other people with FA and families to get support, share experiences, and learn from each other.

Get Educated
These resources are not just valuable to you, but also to your physicians, teachers, and family members. We encourage you to share them with anyone involved in the care of you or your loved one(s).

Sign up as an Individual with FA or an FA Family

Be a part of our network of family education & support services

Signing up with FARF gives you access to educational materials, resources, support services, and community. All information and services are free, and your information is kept confidential.

This group has a wonderful amount of knowledge to share & will send you positive vibes when you lack strength. It’s a wonderful outlet for questions, information, love, and support throughout the journey.

—FA Parent