Newly Diagnosed

We know that the Fanconi anemia diagnosis can be overwhelming. It’s a lot to digest. Please know that you are not alone. We’re here to help you understand what it means to live with FA and to connect you to the education and support services that will make this diagnosis a bit more manageable.

Fanconi anemia (known as FA) is a complex disease that can affect every system of the body, and the severity of symptoms can differ widely from person to person. A diagnosis of FA has social, emotional, and financial impacts on the individual and family, as well. Being educated and supported throughout the process of diagnosis, and into treatment and management, is paramount to well-being and coping with a chronic disease.


FARF offers a variety of services to assist those diagnosed and their families who register with us (at no cost). Fill out this form and our Family Services team will be in touch right away!

Get Educated

These resources are not just valuable to you, but also to your physicians, teachers, and family members. We encourage you to share them with anyone involved in the care of you or your loved one(s).


Connect with other people with FA and families to get support, share experiences, and learn from each other.