Did you know there are podcasts out there focused on rare diseases? There’s even one specific to Fanconi anemia, hosted by Danish adult with FA, Daniel Kold. We’ve pulled together a list of some podcasts you may want to check out. Let us know if you have any other suggestions! You can email them to .(JavaScript must be enabled to view this email address).


Life, Death, & Happiness Podcast (by Daniel Kold, an adult with FA)


In Sickness (by Allison Breininger, spouse to an adult with FA)

Real Men Podcast - Jacks Caregiving Coalition

Happy, Healthy, Caregiver Podcast

Business, Science, Policy

Rare Perspective Podcast

Rare Disease, Cell & Gene Therapy Weekly Roundup

AI in Drug Discovery

An Arm & a Leg Podcast

Healthcare Policy Podcast


Diverse Perspectives on Health & Illness Podcast



Openly Rare

Beyond Your DX

Ten Percent Happier

Meditation for Fitness Peeps


Misguided Notions Podcast

Disarming Disability

Patient Stories

Rare in Common

Psychosocial (Kids)

Be Calm Ahway Island Bedtime Stories

Peace Out