FA Treatment and Testing Centers

Fanconi Anemia Research Fund Treatment and Testing Resource Guide 2008

Detailed information on the treatment and testing centers listed below, including addresses, physicians, and services offered. The resources provided in this guide are not inclusive or endorsed by the Fanconi Anemia Research Fund, Inc.

Treatment Resources

Internationally and regionally grouped links and contact information to treatment centers.

Testing Centers

Internationally grouped links and contact information.

Please contact our Family Support Coordinator for more information.
Telephone:(541)687-4658 or
Toll-free within the United States: 1-888-FANCONI (888-326-2664)
E-mail: familysupport@fanconi.org

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Treatment Resources

Brazil (back)
Hospital de Clinicas, University of Parana (Curitiba, Brazil)
Fanconi Anemia Comprehensive Care Clinic
Contact: Ricardo Pasquini, MD

Canada (back)
Hospital Sainte-Justine (Montreal, Quebec, Canada)
Bone Marrow Failure Program
Contact: Josette Champagne, MD

The Hospital for Sick Children (Toronto, Ontario, Canada)
Contact: Yigal Dror, MD
(Also a testing center)

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France (back)
Hospital Saint-Louis (Paris, France)
Contact: Professor Eliane Gluckman, MD

Germany (back)
Charité, Campus Virchow Klinikum (Berlin, Germany)
Children’s Hospital
Contact: Wolfram H. Ebell, MD

Heinrich Heine University Medical Center (Düsseldorf, Germany)
Children’s Hospital
Contact: Helmut Hanenberg, MD
(Also a testing center)

India (back)
Apollo Specialty Hospital (Chennai, India)
Contact: Dr. Sheila Mohan

Israel (back)
Hadassah Hospital (Jerusalem, Israel)
Bone Marrow Transplantation and Cancer Immunotherapy
Contact: Shimon Slavin, MD

Italy (back)
University of Pavia (Pavia, Italy)
Pediatric Haematology and Oncology Unit
Contact: Professor Franco Locatelli, MD

Japan (back)
Tokai University (Kanagawa, Japan)
Department of Cell Transplantation and Regenerative Medicine
Contact: Hiromasa Yabe, MD

Netherlands (back)
Vrije University Medical Center (Amsterdam, The Netherlands)
Department of Clinical Genetics
Contact: Hans Joenje, PhD
(Also a testing center)

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South Africa (back)
Constantiaberg Medi-Clinic (Capetown, South Africa)
Department of Haematology and Bone Marrow Transplant Unit
Contact: Professor Peter Jacobs, MD, PhD

Spain (back)
Universitat Autónoma de Barcelona (Barcelona, Spain)
Contact: Jordi Surralles, PhD
(Also a testing center)

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United States

Midwest Region (back)

Children’s Hospital Medical Center (Cincinnati, Ohio)
The Fanconi Anemia Comprehensive Care Center
Contact: Robin Mueller, RN

Cincinnati Hand Surgery Specialists (Cincinnati, Ohio)
Reconstructive Hand Surgery
Contact: Thomas R. Kiefhaber, MD

Loyola University Medical Center (Maywood, Illinois)
Contact: L. Terry Koepke, RN, Nurse Coordinator

The Reproductive Genetics Institute (Chicago, Illinois)
Contact: Allen Horwitz, MD, PhD

The Genesis Genetics Institute (Detroit, Michigan)
Geonomic Technology Center
Contact: Mark Hughes, MD, PhD

University of Minnesota Children's Hospital (Minneapolis, Minnesota)
Fanconi Anemia Comprehensive Care Program
Umbilical Cord Blood Transplantation Program
Contact: John E. Wagner, MD

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Northeast/Mid-Atlantic Region (back)

Children's Hospital Boston (Boston, Massachusetts)
Hematology Clinic
Contact: Akiko Shimamura, MD, PhD

Dana-Farber Cancer Institute (Boston, Massachusetts)
Comprehensive Fanconi Anemia Center
Contact: Alan D'Andrea, MD
(Also a testing center)

Hackensack University Medical Center (Hackensack, New Jersey)
Contact: Alfred P. Gillio, MD

Memorial Sloan-Kettering Cancer Center (New York, New York)
Contact: Farid Boulad, MD

Mount Sinai School of Medicine (New York, New York)
Novel Therapeutics and Stem Cell Transplantation Program
Contact: Christopher Walsh, MD, PhD

National Cancer Institute (Rockville, Maryland)
Clinical Genetics Branch, Division of Cancer Epidemiology and Genetics
Contact: Blanche P. Alter, MD, MPH

National Heart, Lung and Blood Institute (Bethesda, Maryland)
Contact: Neal Young, MD

Schneider Children's Hospital - Albert Einstein School of Medicine (New Hyde Park, New York)
Bone Marrow Failure Program
Contact: Adrianna Vlachos, MD

Shriners Hospital for Children (Philadelphia, Pennsylvania)
Pediatric Upper Extremity Surgery
Scott Kozin, MD
Contact: Linda Filipone

University of Virginia (Charlottesville, Virginia)
Contact: Gary Kupfer, MD

Southern Region (back)

Duke University Medical Center (Durham, North Carolina)
Pediatric Bone Marrow Transplant Program
Contact: Joanne Kurtzberg, MD

St. Jude Children's Research Hospital (Memphis, Tennessee)
Contact: Ulrike Reiss, MD
(Also a Testing Center)

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Western/Northwest Region (back)

Fred Hutchinson Cancer Research Center (Seattle, Washington)
Contact: Hans-Peter Kiem, MD

Oregon Health and Science University (Portland, Oregon)
Fanconi Anemia Cell Repository
Contact: Peter Kurre, MD
(Also a Testing Center)

Stanford University Medical Center (Palo Alto, California)
Lucille Packard Children's Hospital
Contact: Michael R. Jeng, MD

Testing Centers

Canada (back)
The Hospital for Sick Children (Toronto, Ontario, Canada)
Contact: Yigal Dror, MD
(Also offers other Fanconi anemia services)

Germany (back)
Heinrich Heine University Medical Center (Düsseldorf, Germany)
Children’s Hospital
Helmut Hanenberg, MD
(Also offers other Fanconi anemia services)

University of Wurzburg (Wurzburg, Germany)
Contact: Detlev Schindler, 49-931-888-4088

Netherlands (back)
Vrije Universiteit, University Medical Center (Amsterdam, The Netherlands)
Contact: G. Pals, PhD
(Also offers other Fanconi anemia services)

Spain (back)
CIEMAT (Madrid, Spain)
Contact: Juan Bueren, PhD

Universitat Autónoma de Barcelona (Barcelona, Spain)
Contact: Jordi Surralles, PhD
(Also offers other Fanconi anemia services)

United Kingdom (back)
Guy’s Hospital (London, England)
Contact: Professor Chris Mathew, PhD

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United States (back)
Cincinnati Children's Research Foundation (Cincinnati, Ohio)
Division of Experimental Hematology, Translational Trials Development and Support Laboratory (TTDSL)
Contact: Dr. David A. Williams, MD
Services offered: FA complementation analysis in CLIA/CAP Accredited laboratory of peripheral blood-derived lymphoblast cell lines or fibroblasts generated from skin biopsies using retrovirus vectors. (Also offers other Fanconi anemia services)

Dana-Farber Cancer Institute (Boston, Massachusetts)
Contact: Lisa Moreau, (617) 632-6302
(Also offers other Fanconi anemia services)

Oregon Health and Science University (Portland, Oregon)
Fanconi Anemia Cell Repository
Contact: Peter Kurre, MD
(Also offers other Fanconi anemia services)

Quest Diagnostics (Chantilly, Virginia)
Contact: Linda Knight, MS (800) 336-3718 ext. 7148

Quest Diagnostics (San Juan Capistrano, California)
Contact: Joy Redman

The Rockefeller University Laboratory of Human Genetics and Hematology
(New York, New York)
Contact: Arleen D. Auerbach, PhD
(Also offers other Fanconi anemia services)

University of Virginia (Charlottesville, Virginia)
Contact: Gary Kupfer, MD
(Also offers other Fanconi anemia services)