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Education Family Support Services provided by the Fanconi Anemia Research Fund include education to FA patients, their families, and treating physicians about the genetic causes and effects of FA and state of the art life-extending or life-saving treatments. Information is provided through publications, the Annual Family Meeting, Regional Meetings, and through consultation with our Family Support Coordinator. |  Genetic counselor Heather Zierhut gets some assistance from adult FA patients at the 2009 Adult FA Meeting |
| Publications which families can use for reference are the following: Treatment and Testing Resource Guide The National Institutes of Health, National
Institute of Dental and Craniofacial Research publishes an excellent reference
entitled Detecting Oral Cancer:
A Guide for Health Care Professionals, which may be helpful to FA Patients. In addition, the Fund sponsored
Carcinogenesis in the Mucosal Linings of the Head
and Neck, a video production by Ruud H. Brakenhoff, PhD, Vrije University,
Department of Otolaryngology/Head and Neck Surgery.
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