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Education Family Support Services provided by the Fanconi Anemia Research Fund include education to FA patients, their families, and treating physicians about the genetic causes and effects of FA and state of the art life-extending or life-saving treatments. Information is provided through publications, the Annual Family Meeting, Regional Meetings, and through consultation with our Family Support Coordinator. |
 Physician Margaret MacMillan, MD presents information to FA patients and their families. |
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Publications which families can use for reference are the following: FA Family Newsletter The National Institutes of Health, National Institute of Dental and
Craniofacial Research publishes an excellent reference entitled Detecting
Oral Cancer: A Guide for Health Care Professionals, which
may be helpful to FA Patients. In addition, the Fund sponsored Carcinogenesis
in the Mucosal Linings of the Head and Neck, a video production
by Ruud H. Brakenhoff, PhD, Vrije University, Department of Otolaryngology/Head
and Neck Surgery.
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