| Annual
Family Meeting
The 2010 Annual Family Meeting will be held from Friday, June 25 to Tuesday, June 29, at Camp Sunshine on Lake Sebago in Casco, Maine. A list of presentation topics for the meeting is available here. The application is available here.
The 2009 Annual Family Meeting was held from Friday, August 7, to Tuesday, August 11, at Camp Sunshine on Lake Sebago in Casco, Maine. A total of fifty-nine families from eight countries, including Argentina, Australia, Canada, France, Germany, Israel, and the United Kingdom were in attendance. Thirteen families attended the meeting for the first time.
A listing of the topics and presenters for 2009 is available below:
2009 Presentation Topics
To view PowerPoint presentations from the 2009 family meeting, please follow the links below:
Gastrointesinal, Liver and Nutritional Problems in FA
by Sarah Jane Schwarzenberg, MD, University of Minnesota
Gynecologic Issues for Girls with FA
by Jill Huppert, MD, MPH, Cincinnati Children's Hospital Medical Center
Hand Differences in FA
by Scott Kozin, MD, Shriners Hospital for Children
Hearing Considerations and FA
by Frank Ondrey, MD, PhD, University of Minnesota
Hematopoietic Stem Cell Transplantation in FA
by Parinda Mehta, MD, Stella Davies, MBBS, PhD, MRCP, and Richard Harris, MD, Cincinnati Children's Hospital Medical Center
Patient Advocate Foundation: The Patient's Partner
by Erin Moaratty, Chief Special Projects Officer
To view summaries from the 2009 family meeting, please follow the links below:
Cancer in FA Patients
Preimplantation Genetic Diagnosis
by Dana Pauling
Highlights from Family Meeting Presentations
For more information contact the Fund at:
Telephone:(541)
687-4658
Toll free in the US: 1-888-FANCONI (888-326-2664)
E-mail: teresa@fanconi.org |
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