Family Support

The Fanconi Anemia Research Fund is committed to providing education and support services to families around the world affected by FA. The Fund sponsors a variety of programs and services to assist the FA patients and their families who register with us (at no cost). To register, or to learn more about the Fund’s family support program and free services, please contact our Director of Family Support Services, Teresa Kennedy.

    Family Support Network
  • Online Support Groups: The Fanconi Anemia Research Fund manages two Yahoo listserv Support Groups and a private Facebook support group, which allow adults with FA and parents of children with FA to exchange questions and information with others affected by FA. Many families find the E-group to be a valuable and readily available source of information to help them deal with the diagnosis and effects of Fanconi anemia. To request to join an E-group, contact Teresa Kennedy, our Director of Family Support Services: E-mail: teresa@fanconi.org, Telephone: 541-687-4658, Toll-free within the United States: 1-888-FANCONI (888-326-2664).
  • International Family Support Network: International families may wish to access additional support within their home countries. Our International Family Support Network guide provides contact information for FA support groups around the world.

of note

Seattle gene therapy clinical trial opens to children 4 years and older learn more...

Annual Family Meeting at Camp Sunshine, June 27 - July 2, 2014 learn more...

Call for Abstracts! Fanconi Anemia Scientific Symposium, September 18-21, Bethesda, Md. learn more...