Annual Family Meeting
Save the date! The 2012 Family Meeting will be held August 10-15 at Camp Sunshine in Casco, Maine.
Watch for details…
The 2011 Annual Family Meeting was held from Friday, June 24 to Tuesday, June 28, at Camp Sunshine on Lake Sebago in Casco, Maine. Fifty-eight families attended, from the U.S., Canada, Australia, France, Germany, Israel, Denmark, and the United Kingdom.
To view PowerPoint presentations from the 2011 family meeting, please follow the links below:
(Please note that some of the files are quite large and may take a few moments to load.)
Fanconi Anemia 101
by Blanche P. Alter, MD, MPH, FAAP, National Cancer Institute, Rockville, MD
The Emerging Adult Population with FA: Challenges, Coping, and Quality of Life
by Amy Frohnmayer, MA, Oregon Health & Science University, Portland, OR
Stem Cell Transplantation
by Wolfram Ebell, MD, Charité-Universitaets Medizin, Berlin, Germany
Chromosome Changes in FA: What are they and what do they mean?
by Betsy Hirsch, PhD, FACMG, University of Minnesota Medical School, Minneapolis, MN
General Overview of FA BMT Process and Risks
by Margaret MacMillan, MD, University of Minnesota Medical School, Minneapolis, MN
Updates on Alternative Donor Stem Cell Transplant for Fanconi Anemia: A Radiation Free Approach
by Steve Margossian, MD, PhD, Dana Farber Cancer Institute/Children’s Hospital Boston, Boston, MA
Nutrition: Eating Well for Taste & Health
by Carol Ceresa, MHSL, RD, San Francisco VA Medical Center, San Francisco, CA
Nutrition Handouts and Recipes
BMT Tips from a Post-Transplant Family
by Mary Ann Fiaschetti, FA Parent
To view PowerPoint presentations from the 2010 family meeting, please follow the links below:
(Please note that some of the files are quite large and may take a few moments to load.)
Hematology 101
by Blanche P Alter, MD, MPH, FAAP, National Cancer Institute
Fanconi Anemia 101
by Blanche P Alter, MD, MPH, FAAP, National Cancer Institute
Finding a New FA Gene
by Blanche P Alter, MD, MPH, FAAP, National Cancer Institute
FA & Endocrine Issues
by Susan R. Rose, MD, Cincinnati Children’s Hospital Medical Center & University of Cincinnati
Gastrointestinal, Liver and Nutritional Problems in FA
by Sarah Jane Schwarzenberg, MD, University of Minnesota
Human Papillomaviruses & Associated Cancers #1 of 2.
by Susanne I. Wells, PhD, Cincinnati Children’s Hospital
Human Papillomaviruses & Associated Cancers #2 of 2
by Susanne I. Wells, PhD, Cincinnati Children’s Hospital
Non-Stem Cell Transplant Management of FA
by Eva Guinan, MD, Dana-Farber Cancer Institute
Post-Stem Cell Transplant Management in FA
by Eva Guinan, MD, Dana-Farber Cancer Institute
Cancer Epidemiology in FA
by Blanche P Alter, MD, MPH, FAAP, National Cancer Institute
Preimplantation Genetic Diagnosis for FA
Christina M. Lavin, MS, CGC, Reproductive Genetics Institute
Microbial markers of oral carcinogenesis in Fanconi Anemia and cancer patients
Flavia Teles, DDS, MS, DMSc, The Forsyth Institute
Patient Advocate Foundation
by Erin Moaratty, Chief of External Communications
Gynecological Issues Facing Female Fanconi Anemia Patients
by Pamela Stratton, MD, National Institutes of Health
Ear & Hearing Problems in FA
by H. Jeffrey Kim, MD, FACS, Georgetown University Hospital
