Meetings for Adults with FA
Meeting for Adults with FA
March 21-24, 2014
Renaissance Baltimore Harborplace Hotel
Inner Harbor, Baltimore, Maryland
- Registration is open as space is available.
Please see the invitation here.
Logistical information about the meeting can be found here.
Tentative topics include:
* Fanconi Anemia 101
* Head and Neck Cancer in FA
* Fundraising for FA research
* Taking Control Through Nutrition and Positive Thinking
* Gynecologic Issues in FA
* Aldehydes: What are They and Why Should They be Avoided?
* Personal Relationships: FA Genetics and Fertility
* Support Groups
* FA Research Projects
25 adults with FA from around the world attended the 2012 Meeting for Adults with FA in Austin, Texas.
To view PowerPoint presentations from the 2012 Adults with FA Meeting, please follow the links below:
(Please note that some of the files are quite large and may take a few moments to load.)
Gene Therapy for Fanconi Anemia: The Second Decade and Beyond
by Jennifer E. Adair, PhD, Fred Hutchinson Cancer Research Center, Seattle, WA
Fanconi Anemia 101
by Blanche P. Alter, MD, MPH, FAAP, National Cancer Institute, Rockville, MD
Head and Neck Cancer in FA: Risks, Prevention, Screening, and Treatment Options
by David I. Kutler, MD, Weill Cornell Physicians, New York, NY
Nutrition: Eating Well for Taste and Health
by Carol Ceresa, MHSL, RD, San Francisco VA Medical Center, San Francisco, CA
Gynecologic Considerations in Women with FA
by Rahel Ghebre, MD, MPH, University of Minnesota Medical School, Minneapolis, MN
by Teresa Kennedy, Fanconi Anemia Research Fund, Eugene, OR
Fundraising for FA Research
by Beverly Mayhew, Fanconi Anemia Research Fund, Eugene, OR