Advocacy efforts play an essential role in building stronger systems of care for rare diseases. By elevating the experiences of families and engaging policymakers, organizations such as the Ivan & Joan Foundation are helping move rare disease awareness and care forward in their communities.
Go the Distance
Endure for a Cure
Imagine taking on a physical challenge—running, biking, swimming, hiking, or something completely unique—and knowing that every step, pedal, or stroke you take is helping to find a cure for Fanconi anemia. Endure for a Cure is your chance to push your limits while raising crucial funds for the Fanconi Cancer Foundation.