Fundraising

You can make a difference

Our fundraisers are essential to the success of our mission. Not only do they provide instrumental funding to advance research and support FA families, they help educate others about why FA research matters and how it benefits those affected by cancer, too.

What’s remarkable about our organization is the way many FCF-funded researchers leverage their FCF grants to go on to receive much larger government or institution-based funding. This means the impact of your fundraising and donations grows exponentially.

Here are just a couple remarkable achievements made possible by our dedicated fundraisers:

Research Breakthroughs

Donations have led to the discovery of 23 genes, uncovered connection between FA and cancer, and skyrocketed survival rates for bone marrow transplants. We now have more adults with FA than children in our community! And in 2022, fundraising success supported a total of $2,874,852 awarded to 9 new and ongoing research projects, with a major focus on cancer.

Community Support Programs

Through your contributions, we have expanded our support programs, offering a lifeline to people with FA and their caregivers and families. These programs include caregiver, patient advocacy, grief support, 1:1 psychosocial support, and a Virtual Tumor Board to help those with a cancer diagnosis.

This is the power of a united and driven community! Want to join this incredible group of dedicated fundraisers?

3 Ways to Get Involved:

FA Awareness Month

Every May, we come together to celebrate the FA community by raising funds and awareness.
This is a fantastic choice to start fundraising because it only takes 5 minutes to create your personal fundraising page.

Giving Tuesday and Holiday Giving

Giving Tuesday (the Tuesday after Thanksgiving) is a global day of generosity, a chance to come together and give back to causes that matter. We are ready to assist you with your end of year fundraising efforts!

Create Your Own Fundraiser

Do you have a creative or specific fundraising idea in mind? We would love to hear from you!
Connect with Rosie Holcomb, your dedicated point of contact to discuss your fundraising ideas and bring them to life.

Support A Fundraiser

Discover Fundraisers Near You

Are you looking to support other families with their fundraisers? Click below to explore a list of ongoing fundraisers in your area and join hands with passionate individuals working towards a cure.

The Latest

News & Events

Introducing the Fanconi Cancer Foundation: A New Era in FA Research & Impact

In 1989, Lynn and David Frohnmayer founded the Fanconi Anemia Research Fund (FARF), determined and desperate to find a cure for their three daughters diagnosed with Fanconi anemia (FA). Since then, their vision has grown into a vibrant community of FA families, researchers, clinicians, donors, fundraisers, staff, and volunteers, all dedicated to improving outcomes for people with FA.

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The Genetic Revolution for Fanconi Anemia Begins Now 

World-Renown Experts Take On the Root of the Problem The long-awaited genetic revolution for rare genetic diseases has arrived and with it, the potential to cure diseases like FA within our lifetimes using state-of-the-art gene therapy (gene replacement) and gene...

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From Diagnosis to Advocacy: My Story with Fanconi Anemia

My name is Blue Mohr and I’m a 27-year-old living with Fanconi anemia (FA). I’m from Austin, Texas, though I am currently living in Washington, D.C. where I’m pursuing a Master of Public Health degree from the George Washington University with concentrations in epidemiology, cancer, and public health communication and marketing. 

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