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Founders

Lynn and Dave Frohnmayer are parents of children afflicted by Fanconi anemia. The Frohnmayers founded the FA Family Support Group in 1985. They write and edit the FA Family Newsletter. They also wrote Fanconi Anemia: A Handbook for Families and Their Physicians and contributed to Fanconi Anemia: Guidelines for Diagnosis and Management. In 1989, they helped incorporate the Fanconi Anemia Research Fund, Inc., a tax-exempt nonprofit corporation, in order to further scientific research.

Dave Frohnmayer is President Emeritus and Professor of Law at the University of Oregon. He served as Attorney General of Oregon from 1981 to 1991 and was Dean of the University of Oregon School of Law from 1992 to 1994. He was educated at Harvard College and holds an MA degree from Oxford University, where he studied as a Rhodes Scholar. He received his JD from the University of California, Berkeley. Dave was a founding Director of the National Marrow Donor Program and a past member of the Board of Trustees of the Fred Hutchinson Cancer Research Center. He also serves as an Advisor to the Board of Directors of the Fanconi Anemia Research Fund.

Lynn Frohnmayer is a graduate of Stanford University and received her Master in Social Work degree from Smith College. She has been a caseworker and a manager for the Oregon Children's Services Division and a national consultant and trainer on foster care issues. She is a past member of the Board of Directors of Doernbecher Children's Hospital Foundation. Lynn has served as Family Support Coordinator for the Fanconi Anemia Research Fund and is now on the Board of Directors.

Lynn and Dave are the parents of Mark, Johnathan and Amy. Their daughter Katie died from complications of FA in 1991, at the age of 12. Another daughter, Kirsten, died of graft-versus-host disease of the lungs (following a bone marrow transplant for FA) in June 1997, at the age of 24.

of note

Please see the Fund's 2014 highlights from our Executive Director! learn more...

Take a look at FARF's 25th Anniversary Video! learn more...

The Fall 2014 Edition of the Family Newsletter is available now! learn more...

The FARF office will be closed Nov. 27 & 28 for Thanksgiving and Dec. 24 & 25 for Christmas learn more...