Publications
The Fanconi Anemia Research Fund is dedicated to providing meaningful, up-to-date publications to help educate affected families and clinicians about FA. Available publications include:
- FA Courier—The FA Courier helps to connect the FA community to current FA-related research projects. The FA Courier is published twice per year. The FA Courier:
- outlines the process for submitting much-needed research samples to aid in the fight against FA
- lists current research projects and clinical trials seeking participants from the FA community
- informs scientists/researchers of available research samples and materials
Fanconi Anemia: A Handbook for Families and their Physicians (Third Edition, 2000)
This handbook is also available in Spanish and French:
Anemia de Fanconi: Un Manual Para Las Familias y sus Medicos (Tercera edicion, 2000)
Anemie de Fanconi: Manuel pour les familles et leur médecin (Troisième édition, publiée en mars 2000)- Family Newsletter—The Fanconi Anemia Research Fund publishes the FA Family Newsletter twice per year. The Newsletter contains articles on FA-related research, scientific information about FA, and stories of families coping with FA.
- Fanconi Anemia: Guidelines for Diagnosis and Management, Third Edition, 2008—These guidelines came out of a Consensus Conference held by the Fanconi Anemia Research Fund in 2008. This publication is for physicians who provide primary care for FA patients, as well as patients and families who wish to develop a more comprehensive medical understanding as they work to secure optimal treatment through consultation and appropriate referral.
- International Treatment and Testing Resource Guide—This publication includes detailed information on treatment and testing centers, including addresses, physicians and services offered. The resources in this guide are not inclusive or endorsed by the Fanconi Anemia Research Fund, Inc.
SCC Fact Sheet—Regular screenings for oral cancer are critically important for FA patients.To help you communicate the urgency of this issue with health care professionals, we’ve prepared two flyers – one for dentists and one for ear, nose and throat doctors (ENTs).The flyers include specific instructions about how to conduct a thorough oral cancer screening exam. We recommend that you take a flyer with you to every visit with your ENT physician and dentist. You can request color copies from our office or download the files in a variety of languages here.
To request a publication, please contact us.
