FA Courier
The Fanconi Anemia Research Fund publishes the FA Courier for the following purposes:
- To keep families informed of research projects and clinical trials in which they may be interested
- To encourage FA patients to respond to the urgent need for research materials for FA research projects. The materials needed include blood, cord blood, bone marrow, and samples of tumors. Research materials also include the participation by FA patients or relatives in the collection of data about the disease, such a completing questionnaires about FA.
Many patients undergo periodic CBCs and bone marrow aspirations. At that time, it is possible that the FA patient’s physicians can draw a small additional amount to send to a research laboratory without causing any harm or additional discomfort to the FA patient. Whenever a tumor is biopsied or removed, it is possible to donate a small sample for research purposes.
Researchers don’t need samples just from FA patients. Some studies request samples from relatives of FA patients, so family members of patients are urged to respond to these requests as well.
Researchers studying FA are encouraged to submit their projects to the FA Courier if they have a need for FA-specific research materials to complete the project.
A summary version of the FA Courier is mailed annually. View the full text version of FA Courier #16 for full information about each request or clinical trial, including eligibility, protocol descriptions and the importance of the study to Fanconi anemia patients in pdf format.
(To view the electronic version of the FA Courier in pdf format, Adobe Reader is required - Download a free copy of Adobe Reader.)
Information provided in this publication about medications, treatments, or products should not be construed as medical instruction or scientific endorsement. Always consult your physician before taking any action based on the information from this website.
