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Now Recruiting: Study to improve early detection of cancer and clinical care
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Now Recruiting: Study to improve early detection of cancer and clinical care

Apr 7th, 2023

Participate in the NCI Fanconi Anemia Cancer Screening Study and help us improve early detection of cancer and clinical care of people with Fanconi anemia.

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Topics: Announcements


Finding Hope, Unity, and Strength: The Transformative Experience of the FA Family Retreat at Camp Sunshine

Finding Hope, Unity, and Strength: The Transformative Experience of the FA Family Retreat at Camp Sunshine

By: Matt Wisniewski | Sep 11th, 2023

We are the Wisniewski family from Virginia. Our daughter Libi is 9-months-old and was diagnosed with Fanconi anemia (FA) only 30 days after she was born.

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Topics: Stories


Our Path Through Fanconi Anemia and Mental Resilience

Our Path Through Fanconi Anemia and Mental Resilience

By: Jen Aitkins | Aug 18th, 2023

As any parent knows when dealing with a child struggling with a rare disease, your mental health takes a toll. That's why therapy is a monthly ritual in our household.

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Topics: Stories

Scientist Spotlight: Ramon Garcia-Escudero

Scientist Spotlight: Ramon Garcia-Escudero

Aug 7th, 2023

Meet Dr. Ramon Garcia-Escudero, working on finding effective cancer treatments for FA

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Topics: Stories

The FA Connections that Changed Everything

The FA Connections that Changed Everything

By: Vicki Athens | Jul 10th, 2023

Our journey to the diagnosis of Fanconi anemia (FA) started in 1986 when we conceived a child via In vitro Fertilization (IVF). In my heart of hearts, I knew something was wrong.

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Topics: Stories

Scientist Spotlight: Tai Nguyen

Scientist Spotlight: Tai Nguyen

Jun 16th, 2023

Learn about Tai Nguyen, cancer and CRISPR researcher working on FA at the basic science level

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Topics: Stories