Community News


Toxic Positivity: It’s okay not to be okay

Toxic Positivity: It’s okay not to be okay

Aug 19th, 2020

The current cultural pressure to maintain an upbeat and positive outlook in the face of a health crisis is 1) nothing new to FA families; and 2) can actually be detrimental to one’s wellbeing.

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Topics: Announcements

Scientist Spotlight: Agnieszka Czechowicz

Scientist Spotlight: Agnieszka Czechowicz

Aug 14th, 2020

Learn more about Dr. Czechowicz, who works on improving bone marrow transplants & gene therapy in FA

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Topics: Stories

Caregiver Profile: Mary Tanner

Caregiver Profile: Mary Tanner

Aug 4th, 2020

An interview with Mary, mother to an adult son living with Fanconi anemia

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Topics: Stories

Fundraising Wins: 2019-2020

Fundraising Wins: 2019-2020

Jul 28th, 2020

We've had a great year in fundraising, thanks to our dedicated family fundraisers and our generous donors!

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Topics: Announcements

Our Journey to Emma

Our Journey to Emma

By: Keith Loo | Jul 14th, 2020

FA is unique to every individual and every family. There are many dark moments throughout each of our journeys. However, there are bright moments as well, even during some of the darkest times.

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Topics: Stories

Exit Interview

Exit Interview

By: Sharon Schuman, PhD | Jun 17th, 2020

It seemed like the more research FARF funded and the more we learned, the more tantalizing was the possibility that somewhere out there might be a drug that could turn FA into a manageable condition.

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Topics: Stories