The Clinical Programs Manager (CPM) is responsible for managing the administrative aspects of clinical programs for the Fanconi Anemia Research Fund (FARF)
Until September 2017, we were a happy family of six. Well, our lovely happy little family tripped into a very heavy hurdle that involved the health of our beloved little ninja, Omar.
Without a doubt, 2020 has been one of the most difficult and challenging years our family has faced. With Covid-19 changing the world as we know it, we have faced our own battle with an FA diagnosis.
The current cultural pressure to maintain an upbeat and positive outlook in the face of a health crisis is 1) nothing new to FA families; and 2) can actually be detrimental to one’s wellbeing.
Learn more about Dr. Czechowicz, who works on improving bone marrow transplants & gene therapy in FA
An interview with Mary, mother to an adult son living with Fanconi anemia