The current cultural pressure to maintain an upbeat and positive outlook in the face of a health crisis is 1) nothing new to FA families; and 2) can actually be detrimental to one’s wellbeing.
Learn more about Dr. Czechowicz, who works on improving bone marrow transplants & gene therapy in FA
An interview with Mary, mother to an adult son living with Fanconi anemia
We've had a great year in fundraising, thanks to our dedicated family fundraisers and our generous donors!
FA is unique to every individual and every family. There are many dark moments throughout each of our journeys. However, there are bright moments as well, even during some of the darkest times.
It seemed like the more research FARF funded and the more we learned, the more tantalizing was the possibility that somewhere out there might be a drug that could turn FA into a manageable condition.