Community News


Intoxicating Gratitude

Intoxicating Gratitude

By: Egil Dennerline | Mar 26th, 2020

Thirty years ago, I was told that I had an incurable terminal illness called Fanconi anemia (FA). Doctors told my father I wouldn't live into my 20s. I'm now 44.

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Topics: Stories

Learning how to dance life

Learning how to dance life

By: Amy Frohnmayer Winn | Mar 20th, 2020

FA has been my greatest teacher. Through the fires of fear and loss, and the lens of a condensed time perspective, this illness has made me inescapably aware of the preciousness of life.

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Topics: Stories

A Space for Caregivers

A Space for Caregivers

By: Allison Breininger | Mar 18th, 2020

One group of people we often think about but don’t often directly address is caregivers. All of the partners, parents, siblings, grandparents, and friends, we want you to know how vital you are.

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Topics: Stories

FARF Statement on COVID-19

FARF Statement on COVID-19

Mar 13th, 2020

The Fanconi Anemia Research Fund (FARF) is closely monitoring the updates regarding COVID-19, a respiratory illness caused by a new coronavirus, as well as potential implications on the FA community.

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Topics: Announcements

One Final Summit

One Final Summit

By: Bill McCorey | Feb 21st, 2020

Bill McCorey has spent the last decade climbing mountains all over the world to raise funds for FA research. In 2020, he takes on his final challenge.

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Topics: Stories

Words of encouragement for everyone transitioning from pediatric to adult care

Words of encouragement for everyone transitioning from pediatric to adult care

By: Mary-Beth Johnson | Feb 20th, 2020

Growing up and taking control of your care is one of the most important - and challenging - steps you will take in adulthood.

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Topics: Stories