Community News

Global Fanconi Anemia Gene Therapy Program Update
Featured

Global Fanconi Anemia Gene Therapy Program Update

By: Participating Institutions | Aug 22nd, 2018

Updates on the gene therapy trials open to people with FA on two continents.

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Topics: Announcements


What Does it Take to Be a Caregiver?

Caregiver Job Description

By: Allison Breininger | Oct 9th, 2018

What does it take to be a caregiver? Read an honest portrayal by the spouse of an adult with FA.

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Topics: Stories

Ten of the Best Things about FA Family Camp

Ten of the Best Things about FA Family Camp

Sep 6th, 2018

We asked FA families to share with us some of their favorite moments from 2018’s meeting. As memories were shared, we noticed some common themes that families seemed to appreciate most about camp.

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Topics: Stories

Global Fanconi Anemia Gene Therapy Program Update

Global Fanconi Anemia Gene Therapy Program Update

By: Participating Institutions | Aug 22nd, 2018

Updates on the gene therapy trials open to people with FA on two continents.

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Topics: Announcements

New FA Research Funded

New FA Research Funded

Jul 12th, 2018

​We are excited to fund four new research projects, two targeting the blood problems in Fanconi anemia, and two focusing on understanding cancer in FA.

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Topics: Announcements

FARF Tank

FARF Tank

Jun 19th, 2018

Do you have an idea for a research project and need funding to develop it? We want to hear about it. Introducing FARF Tank: a chance to win a $10,000 grant for your project

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Topics: Announcements

Head and Neck Squamous Cell Carcinoma: Developing Guidelines to Maximize Therapeutic Outcomes

HNSCC in FA Meeting

Jun 13th, 2018

Clinical and scientific experts met in Pittsburgh to discuss HNSCC in FA and how to improve prevention and treatment outcomes.

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Topics: Announcements