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Clinical and scientific experts met in Pittsburgh to discuss HNSCC in FA and how to improve prevention and treatment outcomes.
Dr. Borgonha will lead FA translational science efforts, including the development of a clinical registry and biobank.
FA was once an orphan disease that no one knew anything about, except that it was rare, it affected the blood and it was fatal. Thanks to 30 years of research, this is no longer the case.
This May, 30 FA families and members of the FA community held fundraisers all over the country and beyond to raise funds for research & family services.
The 4th Annual 5K for FA in honor of Eli Lana took place May 5 in Hilton, NY.