Community News


Exit Interview

Exit Interview

By: Sharon Schuman, PhD | Jun 17th, 2020

It seemed like the more research FARF funded and the more we learned, the more tantalizing was the possibility that somewhere out there might be a drug that could turn FA into a manageable condition.

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Topics: Stories

Caregiving During Covid

Caregiving During Covid

By: Allison Breininger | Jun 5th, 2020

The fear, concern, vigilance, and practices that the world is currently struggling to adopt have been part of your daily life and mine for years.

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Topics: Stories

We Will Do Better

We Will Do Better

Jun 5th, 2020

A message from FARF Executive Director Mark Quinlan in support of the Black community

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Topics: Announcements

One donor honors her brother’s memory and helps find a cure for her niece

One donor honors her brother’s memory and helps find a cure for her niece

May 26th, 2020

Through donating to FARF, I hope and pray to find a cure for Emily and all those who suffer from this terrible disease.

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Topics: Stories

Can brush biopsies identify pre-malignant or malignant oral lesions? Study results show yes

Can brush biopsies identify pre-malignant or malignant oral lesions? Study results show yes

May 11th, 2020

Researchers conducted a study to determine if oral pre-malignant and malignant lesions can be accurately identified using brush biopsies.

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Topics: Announcements

2020 Meeting Changes

2020 Meeting Changes

Apr 21st, 2020

Changes to the 2020 Scientific Symposium and Meeting for Adults with FA

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Topics: Announcements