Community News


Now Hiring Clinical Programs Manager

Now Hiring Clinical Programs Manager

Nov 19th, 2020

The Clinical Programs Manager (CPM) is responsible for managing the administrative aspects of clinical programs for the Fanconi Anemia Research Fund (FARF)

Read More >

Topics: Announcements

A Ninja from the Desert

A Ninja from the Desert

By: Assila Al Marshoudi | Oct 27th, 2020

Until September 2017, we were a happy family of six. Well, our lovely happy little family tripped into a very heavy hurdle that involved the health of our beloved little ninja, Omar.

Read More >

Topics: Stories

A diagnosis of FA amidst a global pandemic

A diagnosis of FA amidst a global pandemic

By: Chris Payne | Sep 10th, 2020

Without a doubt, 2020 has been one of the most difficult and challenging years our family has faced. With Covid-19 changing the world as we know it, we have faced our own battle with an FA diagnosis.

Read More >

Topics: Stories

Toxic Positivity: It’s okay not to be okay

Toxic Positivity: It’s okay not to be okay

Aug 19th, 2020

The current cultural pressure to maintain an upbeat and positive outlook in the face of a health crisis is 1) nothing new to FA families; and 2) can actually be detrimental to one’s wellbeing.

Read More >

Topics: Announcements

Scientist Spotlight: Agnieszka Czechowicz

Scientist Spotlight: Agnieszka Czechowicz

Aug 14th, 2020

Learn more about Dr. Czechowicz, who works on improving bone marrow transplants & gene therapy in FA

Read More >

Topics: Stories

Caregiver Profile: Mary Tanner

Caregiver Profile: Mary Tanner

Aug 4th, 2020

An interview with Mary, mother to an adult son living with Fanconi anemia

Read More >

Topics: Stories