Participate in the NCI Fanconi Anemia Cancer Screening Study and help us improve early detection of cancer and clinical care of people with Fanconi anemia.
We are the Wisniewski family from Virginia. Our daughter Libi is 9-months-old and was diagnosed with Fanconi anemia (FA) only 30 days after she was born.
As any parent knows when dealing with a child struggling with a rare disease, your mental health takes a toll. That's why therapy is a monthly ritual in our household.
Meet Dr. Ramon Garcia-Escudero, working on finding effective cancer treatments for FA
Our journey to the diagnosis of Fanconi anemia (FA) started in 1986 when we conceived a child via In vitro Fertilization (IVF). In my heart of hearts, I knew something was wrong.
Learn about Tai Nguyen, cancer and CRISPR researcher working on FA at the basic science level