Pioneering
Research
for a Brighter Tomorrow

How We Can Help

How You Can Help

A Beacon of Support

Fanconi Cancer Foundation

Our mission is to improve the lives of people affected by Fanconi anemia and associated cancers worldwide by funding exceptional research and empowering our community.

Founded in 1989 by parents Lynn and David Frohnmayer, FCF’s contributions have been instrumental in understanding the disease and improving treatments, with more than $33 million funded for 260+ research projects worldwide. Life expectancy has more than doubled as treatments have drastically improved. We must now take on the most significant and currently unsolved problem facing the FA community today: cancer.

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The World Leader in FA Research

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Igniting Solutions

Empowering Lives through Research

Cancer may be the most difficult issue that people with FA face in their lifetimes. As the leading foundation dedicated to supporting research on this disease, we must intensify our focus on this urgent and currently unsolved problem to discover solutions.

That’s why our research activities are focused on cancer prevention, detection, treatment and awareness. Because all facets of this disease are interconnected, we also fund research into gene editing and gene therapy, preclinical models, clinical trials, improving quality of life, and understanding the disease.

Our Research

10,000+

Donors Invested

$33M+

In Research

1,500+

Families Registered

23

Genes Identified

Unleashing Progress

Creating
Lifelong Impact

Our efforts extend beyond research, encompassing advocacy, community support, educational resources, and clinical programs like the Virtual Tumor Board and the FA Patient Registry.

We envision a future in which we can prevent and/or eliminate the primary causes of death and disability in people with FA, enabling them to live full lives. We've come a long way, but we know there is still a lot of work to be done.

Our Impact

You’re Among An Amazing
Community Of People

10,000+

Donors Invested

1,500+

Families

240+

Funded Researchers

150+

Volunteers

Transparency & Accountability

Our Financials

With your help, we are improving the quality of life for people with FA around the world by funding exceptional research. FCF believes in and practices transparency, accountability, and efficiency. We are always striving to become more efficient and to ensure your generous donations are put to best use by directing as much funding as possible to grants and to supporting our community.

Governance

$1,639,245

Research Initiatives

$1,356,784

Community Support

$398,389

Fundraising

$569,462

Administration

A Network of Love

Caring for Yourself or a Loved One

Join our FA Family Network, which gives you access to educational materials, resources, support services, and community. All information and services are free, and your information is kept confidential.

Enroll as a Family

The Latest

News & Events

Ryan’s Story: The Impact of Research, Support, and Community

When Ryan was diagnosed with Fanconi anemia (FA) at 18 months old, it was devastating. There were so many unknowns, and trying to gather information online was both frustrating and scary. When we found the Fanconi Cancer Foundation (FCF) and...

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Living with Faith and Possibility

For our family, living with FA means living with faith. We see Liam as a normal, healthy child who continues to grow and surprise us. At the same time, we know there are real challenges.

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Speaking Up for Rare Disease Communities

Advocacy efforts play an essential role in building stronger systems of care for rare diseases. By elevating the experiences of families and engaging policymakers, organizations such as the Ivan & Joan Foundation are helping move rare disease awareness and care forward in their communities.

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Eugene, OR 97401

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