Calendar

2019 Family Meeting
Featured

2019 Family Meeting

Jun 21st, 2019

The Family Meeting is an annual event that allows families to attend presentations by FA researchers & physicians, to attend support groups, and to connect with other FA families.

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Upcoming Events

6th Annual Team FARF Pell Bridge Run

Oct 20th, 2019
6th Annual Team FARF Pell Bridge Run

Every fall, FA family members and FA researchers come together to walk/run in the Pell Bridge Run in Newport, RI. All are welcome to join!

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13th Annual Brave Hearts Hoot ‘N’Holler

Nov 9th, 2019
13th Annual Brave Hearts Hoot ‘N’Holler

A boot-stompin' good time for a great cause.

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