This is an interactive session for adults and older teens whose beloved FA person has died. Connect with other bereaved members of the FA family, learn about resources, and share strategies that have supported you in your grief work. We may try some different activities, and break into pairs for some of our time, to get a break from the fatigue of larger Zoom conversations.
Event Details: This event will be hosted from 10:00-11:30 a.m. Pacific Time (MST +1, CST +2, EST +3 hours)
Translation: If you would like to request an interpreter for this session, please register at least one week prior to the event date. We will do our best to fulfill your request. A FARF staff member will email you prior to the event if we are unable to fulfill your request.
Rachel Altmann has been active in the Fanconi anemia community for many years, as an FA parent, a member of the FARF Board of Directors, a contributor to FARF newsletters, and a fundraiser. She has worked in the education sector as an environmental educator at the Hawai’i Nature Center, as an Early Childhood Program Specialist at Multnomah County Library in Portland, Ore, and now as the library’s Youth Learning Supervisor. Her daughter, Nina, died of complications from Fanconi anemia in 2006 at age three and a half. Rachel continues to honor Nina’s legacy by working to advance FA research and support other families who face FA.