FA Connect | Bereavement Support for FA Parents, Caregivers & Siblings

FA Connect | Bereavement Support for FA Parents, Caregivers & Siblings

May 21st, 2022, 10:00 AM



This is an interactive session for adults and older teens whose beloved FA person has died. Connect with other bereaved members of the FA family, learn about resources, and share strategies that have supported you in your grief work. We may try some different activities, and break into pairs for some of our time, to get a break from the fatigue of larger Zoom conversations.

Event Details: This event will be hosted from 10:00-11:30 a.m. Pacific Time (MST +1, CST +2, EST +3 hours)

Translation: In order to help us meet your request for live interpretation services, please register at least one week prior to the session. We will do our best to fulfill your request. A FARF staff member will email you prior to the event if we are unable to provide an interpreter.

Questions? Email Rosie Holcomb ( .(JavaScript must be enabled to view this email address))

Speaker Bio:

Rachel Altmann has been active in the Fanconi anemia community for several years, as an FA parent, a member of the FARF Board of Directors, a contributor to FARF newsletters, and a fundraiser. She has worked in the education sector for many years, as an environmental educator at Hawai’i Nature Center and most recently as Library Outreach Specialist at Multnomah County Library in Portland, Ore. Her daughter, Nina, succumbed to complications from Fanconi anemia in 2006 at age three. Rachel continues to honor Nina’s legacy by working to advance FA research and support other families who face FA.