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FA Connect: How to Talk to Children about Fanconi Anemia

FA Connect: How to Talk to Children about Fanconi Anemia

Nov 10th, 2021, 10:00 AM

 

​ABOUT THE TALK:

This session will help equip caregivers with the tools to engage their children in conversation about a Fanconi Anemia diagnosis. We will outline how children generally cope by developmental age and expand upon how children might cope with the typical characteristics of Fanconi Anemia. By the end of this presentation, attendees will be able to explain FA using developmentally appropriate language. Caregivers will be given the wording to help children understand typical procedures and various treatment options, including Bone Marrow Transplant.

*This session is open to FA parents, caregivers and adults with FA.


SPEAKER HIGHLIGHTS:

Pennie Grubbs is currently a Certified Child Life Specialist at Cincinnati Children’s Hospital working in the Cancer and Blood Diseases Institute. Pennie works primarily in outpatient clinic areas, in addition to working with several patients treated in the Bone Marrow Transplant unit. Pennie has her Masters and Educational Specialist in School Psychology from the University of Kentucky. Pennie has worked at CCHMC for eight years and served on multiple committees including Patient Advisory Council and Education Council. She provides psychosocial support to patients and families as they navigate through life changing diagnoses and treatments. In her spare time, Pennie enjoys watching UK sporting events with her husband, and spending time with her three adult children.

Rebekah Doshi is currently a Certified Child Life Specialist at Cincinnati Children’s Hospital. She primarily works in Day Hospital as well as helping to provide coverage in the Cancer and Blood Diseases Institute Clinic and Bone Marrow Transplant Unit. Rebekah has her Bachelors of Science in Youth, Adult and Family services with a specialization in Child Health from Purdue University. She is passionate about lowering the stress and increasing coping for families as they face hospital experiences. Since beginning her time at Cincinnati Children’s Hospital, she has served on several committees including Child Life Practice Council and the Cancer Committee. Rebekah enjoys reading, eating baked goods and chasing her three children around the house.