FA Connect | Impacts of Mental Health and Quality of Life

FA Connect | Impacts of Mental Health and Quality of Life

Feb 8th, 2023, 10:00 AM
Feb 8th, 2023, 11:00 AM


Description: This session will discuss common mental health challenges faced by adults living with FA, recommendations for advocating for mental health needs with primary care teams, and strategies for improving mental health. We will also describe the Psychosocial Experiences of Adults with Fanconi Anemia (FA) Study that opened for enrollment in fall 2022.

Event Details: This event will be hosted from 10:00-11:00 a.m. Pacific Time (MST +1, CST +2, EST +3 hours)

Translation: In order to help us meet your request for live interpretation services, please register at least one week prior to the session. We will do our best to fulfill your request. A FARF staff member will email you prior to the event if we are unable to provide an interpreter.

Questions? Email Rosie Holcomb (

Speaker Bios:

Megan Voss holds a doctorate of nursing practice with experience in the speciality areas of oncology, integrative health, and mental health care. She has been working with adolescents and young adults with a diagnosis of Fanconi Anemia at the University of Minnesota since 2014. And her research focuses on better understanding the incidence of mental illness in the FA community and other factors that impact quality of life. 

Kathleen Bogart, PhD is an associate professor of psychology at Oregon State University. She studies mental health in people with rare disorders, including Fanconi Anemia, and has a rare disorder herself. An advocate for people with rare disorders and disabilities, she serves on several boards including the American Psychological Association Committee on Disability Issues in Psychology and the Moebius Syndrome Foundation Scientific Advisory Board.