ABOUT THE GROUP:
As caregivers, so much of our time and energy is spent on the person in our family who has FA. But how do we involve and continue to care for the children who don’t? How do we include them while allowing them to maintain their own identity? How do we give them time and attention even when we’re stretched so thin? Join this session to learn from research and lived experiences and to have time to discuss this important topic with your fellow FA caregivers.
*This educational session is open to all caregivers.
Allison Breininger has been caregiver to her husband, Sean, since 2011, when he was diagnosed with Fanconi Anemia at the age of 31. Since then, Allison has been by Sean’s side through a bone marrow transplant, seven different types of cancer, and everything in between. She advocates for caregivers by writing, consulting, training, and speaking honestly and openly about the challenges and realities of the role at her site http://www.thenegativespace.life.