As caregivers, so much of our time and energy is spent on the person in our family who has FA. But how do we involve and continue to care for the children who don’t? How do we include them while allowing them to maintain their own identity? How do we give them time and attention even when we’re stretched so thin? Join this session to learn from research and lived experiences and to have time to discuss this important topic with your fellow FA caregivers. This educational session is open to all caregivers.
Event Details: This event will be hosted from 10:00-11:30 a.m. Pacific Time (MST +1, CST +2, EST +3 hours)
Translation: If you would like to request an interpreter for this session, please register at least one week prior to the event date. We will do our best to fulfill your request. A FARF staff member will email you prior to the event if we are unable to fulfill your request.
Allison Breininger has been caregiver to her husband, Sean, since 2011, when he was diagnosed with Fanconi Anemia at the age of 31. Since then, Allison has been by Sean’s side through a bone marrow transplant, seven different types of cancer, and everything in between. She advocates for caregivers by writing, consulting, training, and speaking honestly and openly about the challenges and realities of the role at her site http://www.thenegativespace.life.