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FA Connect | The Sibling Experience

FA Connect | The Sibling Experience

Dec 17th, 2022, 10:00 AM

 

Description:

What is it like to be a sibling of someone with Fanconi anemia?

This session is open to all siblings (16 and up) of those with Fanconi anemia and any family member who would like to discuss experiences of siblings. Each family member has a unique experience in the FA narrative—-Siblings had a unique role and need opportunities for support, to share their experiences, and a chance to explore issues that are specific to their role in the family.

Siblings are encouraged to attend to hear what other siblings have to say and to share experiences. Several adult siblings of those with FA will join the meeting to share their expertise.

Any questions or if you are interested on being on a panel please contact .(JavaScript must be enabled to view this email address).

Event Details: This event will be hosted from 10:00-11:00 a.m. Pacific Time (MST +1, CST +2, EST +3 hours)

Translation: In order to help us meet your request for live interpretation services, please register at least one week prior to the session. We will do our best to fulfill your request. A FARF staff member will email you prior to the event if we are unable to provide an interpreter.

Questions? Email Rosie Holcomb ( .(JavaScript must be enabled to view this email address))

Speaker Bio: Nancy Cincotta, MSW, LCSW, MPhil, CLS is a nationally known expert regarding issues that children and families experience while living with life-threatening illness, facing the end-of-life, and during bereavement. Ms. Cincotta has worked with persons with FA and their families at Camp Sunshine, Mount Sinai Medical Center and at FA Family and Adult meetings. She is on the faculty of the Icahn School of Medicine at Mount Sinai and teaches in the Genetics Counseling Master’s Degree program. She is also on the Faculty of the Columbia School of Social Work and serves as a mentor at the Smith and NYU Social Work programs. Ms. Cincotta worked as a clinician and supervisor at the Mount Sinai Medical Center in the Department of Social Work for more than 30 years. She earned a Master of Science in Social Work and a Master’s in Philosophy from the Columbia University School of Social Work. She is a past president of the Association of Pediatric Oncology Social Workers, has been a Board Member with multiple professional and non-profit organizations. She has recently completed a Certificate Program in Narrative Medicine.