About Fanconi Anemia

What is Fanconi anemia?
Rare. Complex. Genetic. Learn more about the FA diagnosis and disease itself.

Newly Diagnosed
If you’ve just received an FA diagnosis and have come across this website, you’ve come to the right place. We’re here to help you understand the diagnosis and what it means to live with FA.

How is FA treated? Because it’s a disease that affects multiple systems of the body, there is no single answer to this question. Also, the type and severity of FA symptoms vary from person to person.

Relationship to Cancer
People with FA have a much greater risk of developing leukemia and other cancers than people without FA. That’s why FARF is funding research to better understand this connection, to detect and prevent cancers, and to find treatments.

Clinical Trials & Research Opportunities
New treatments and therapies for people with FA are not possible without research. There are many clinical trials and research opportunities available for people with FA. We encourage patients and families to consider participation.

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You know that warm, fuzzy feeling you get when you’ve done something important and good? We thrive on that. We also count on it: almost all of our funding is the result of individual donations and fundraising efforts. Whether it’s donating, creating your own fundraiser or supporting another, every single effort counts. How will you make a difference today?