FA Educational Resources

Downloads

Fanconi Anemia & FARF Overview

A Closer Look

​How We’re Making Progress

Vidéos en español

Haz clic para ver la serie

Qué es la anemia de Fanconi

2021 FA Connect Videos

Partnership Between Researchers, Docs, Adults (subtitulado ES)
Quercetin Study for Adults with FA (subtitulado ES)
Taking Charge of Your Survivorship (subtitulado ES)
Haploidentical Stem Cell Transplantation (subtitulado ES)
IVF with PGT for Fanconi Anemia & HLA Matching (subtitulado ES)
Living & Coping with FA/Vivir y lidiar con la anemia de Fanconi
The Covid-19 Vaccine & FA
Nutrition & Metabolism in Fanconi Anemia (FA)

Download the transcript from Haploidentical Stem Cell Transplantation

Download the transcript from IVF with PGT for Fanconi Anemia & HLA Matching

Download the transcript from Living and Coping with Fanconi Anemia

Download the transcript from the Covid-19 Vaccine and FA

Download the transcript from Nutrition & Metabolism in FA

Presentations from the 2020 FA Family Meeting

FA 101
FA Stem Cell Transplantation: When, Where, How
FA Diagnosis and Treatment
2020 Clinical Trials & Research Opportunities
Fundraising Wins & Recognition
Nutrition & Metabolism
Cultivating Wellbeing & Resilience
Social Work for Patients Undergoing Transplant
Endocrine System's Role in Growth in Kids with FA
Caregivers Panel
Gene Therapy in FA
Head & Neck Squamous Cell Carcinoma
Oral Care & Self-Examination for Children with FA
Insurance & Disability

​Helpful Videos

Transitioning to Adult Care

Science Snapshot Series

In 2015, FARF and Fanconi Canada co-sponsored the production of the following videos. Thank you to Wil Noack and team for your hard work and generosity in filming, editing, and producing these videos. Click here to see the whole series.

What is FA? - Ray Monnat
C’est quoi l’anémie de Fanconi? - Madeleine Carreau

​Family Stories

FA & FARF Experiences
Families Helping Families - Mary Ann Fiaschetti
Families Helping Families - Mary Ann Lana