Downloads

Fanconi Anemia & FARF Overview

All About FA FA & FARF Frequently Asked Questions FA & FARF Fact Sheet Información completa sobre la AF (ES) Preguntas frecuentes (ES) Ficha informativa (ES)

A Closer Look

Visual: Stem Cell Transplants Visual: Cancer in FA Visual: Stages of Life with FA Bone Marrow Transplant FAQ Endocrine Issues Sun and Skincare The FA Pathway Transplante - preguntas frecuentes (ES) Problemas endocrinos en la AF (ES) Protección solar (ES) Cáncer en la anemia de Fanconi (ES)

How We’re Making Progress

The Path to a Cure What Your Gift Supports Qué acciones apoyo con mi donación (ES)

Vidéos en español

Haz clic para ver la serie

Qué es la anemia de Fanconi

2021 FA Connect Videos (subtitulados en español)

How to Talk to Children about Fanconi Anemia

Creative Solutions to Educational Barriers for Children with FA

Stanford Fanconi Anemia (FA) Program & Clinical Trials

Partnership Between Researchers, Docs, Adults (subtitulado ES)

Quercetin Study for Adults with FA (subtitulado ES)

Taking Charge of Your Survivorship (subtitulado ES)

Haploidentical Stem Cell Transplantation (subtitulado ES)

IVF with PGT for Fanconi Anemia & HLA Matching (subtitulado ES)

Living & Coping with FA/Vivir y lidiar con la anemia de Fanconi

The Covid-19 Vaccine & FA

Nutrition & Metabolism in Fanconi Anemia (FA)

Download the Q+A transcript from Talking to Kids about Fanconi Anemia

Download the Q+A transcript from Creative Solutions to Educational Barriers for Children with Chronic Illness

Download the Q+A transcript from Stanford Care Center & Clinical Trial

Download the transcript from Haploidentical Stem Cell Transplantation

Download the transcript from IVF with PGT for Fanconi Anemia & HLA Matching

Download the transcript from Living and Coping with Fanconi Anemia

Download the transcript from the Covid-19 Vaccine and FA

Download the transcript from Nutrition & Metabolism in FA

Presentations from the 2020 FA Family Meeting

FA 101

FA Stem Cell Transplantation: When, Where, How

FA Diagnosis and Treatment

2020 Clinical Trials & Research Opportunities

Fundraising Wins & Recognition

Nutrition & Metabolism

Cultivating Wellbeing & Resilience

Social Work for Patients Undergoing Transplant

Endocrine System's Role in Growth in Kids with FA

Caregivers Panel

Gene Therapy in FA

Head & Neck Squamous Cell Carcinoma

Oral Care & Self-Examination for Children with FA

Insurance & Disability

Helpful Videos

Transitioning to Adult Care

Science Snapshot Series

In 2015, FARF and Fanconi Canada co-sponsored the production of the following videos. Thank you to Wil Noack and team for your hard work and generosity in filming, editing, and producing these videos. Click here to see the whole series.

What is FA? - Ray Monnat

C’est quoi l’anémie de Fanconi? - Madeleine Carreau

Family Stories

FA & FARF Experiences

Families Helping Families - Mary Ann Fiaschetti

Families Helping Families - Mary Ann Lana