Family Meeting

FAGroupCamp Kids, teens & adults with FA at the 2018 Family Meeting

The in-person 2020 Family Meeting, scheduled June 26 - July 1 at Camp Sunshine in Casco, Maine, has been canceled. We will be holding a virtual meeting June 26-29.

In light of the situation regarding COVID-19, Camp Sunshine canceled all June sessions, including the FA session. We understand and support this decision to keep everyone safe. We also know how meaningful this meeting is for families to connect, learn, and share.

That’s why we are developing a ‘virtual camp’ to be held on the days we had scheduled to be in Maine. While we are unable to recreate the magic of Camp Sunshine, we will do our best to create a valuable experience through webinars, presentations, Q & A’s, and opportunities to connect virtually. This is open and available to all FA families registered with FARF, not just those who intended to go to Camp Sunshine. Registration closed May 15.

Videos and updates from the meeting will be shared in July.

What is the Family Meeting?

The Family Meeting is a unique event that allows families registered with FARF to attend presentations by researchers and physicians who are active in the research and treatment of Fanconi anemia (FA), to attend support groups for help in coping with the disease, to voluntarily participate in FA research projects, and to connect with other families affected by FA. Camp Sunshine volunteers provide a fun-filled program for children with FA and their siblings.

What is Camp Sunshine?

Camp Sunshine provides retreats combining respite, recreation, and support, while enabling hope and promoting joy, for children with life-threatening illnesses and their families through the various stages of a child’s illness. The program is free of charge to families and includes on-site medical and psychosocial support. Bereavement sessions are also offered for families who have experienced the death of a child. Learn more at

Who can go?

Anyone with FA and his/her family are welcome and invited to apply. People from all countries are welcome. Newly diagnosed families are especially encouraged to apply. There is no cost to attend other than travel expenses. Travel scholarships are available through FARF to assist with these expenses.

How do I apply?

Find the application below. We also send out an invitation via email in January of each year. You can also .(JavaScript must be enabled to view this email address) with any questions or if you would like to apply for a travel scholarship.