Family Meeting

FAGroupCamp Kids, teens & adults with FA at the 2018 Family Meeting

2022 Meeting Update

April 2022: Camp Sunshine announced they will not be hosting disease-specific programs this year. Instead, they will host camp events and programs throughout the summer (including virtual programs). Only individuals from certain regions are eligible to attend in-person events. Full eligibility information is provided on their website.

We hope to return to our FA program next year and will of course keep you updated. In the meantime, be sure to check out Camp’s offerings, and we hope to see some of you at the 2022 FARF Scientific Symposium and FA Adult Retreat this September 8-11 in Austin, Texas.

FARF will continue with our virtual FA Connect series to provide opportunities for connection and learning.

We look forward to returning to our regular in-person gathering in 2023!

What is the Family Meeting?

The Family Meeting is a unique event that allows families registered with FARF to attend presentations by researchers and physicians who are active in the research and treatment of Fanconi anemia (FA), to attend support groups for help in coping with the disease, to voluntarily participate in FA research projects, and to connect with other families affected by FA. Camp Sunshine volunteers provide a fun-filled program for children with FA and their siblings.

What is Camp Sunshine?

Camp Sunshine provides retreats combining respite, recreation, and support, while enabling hope and promoting joy, for children with life-threatening illnesses and their families through the various stages of a child’s illness. The program is free of charge to families and includes on-site medical and psychosocial support. Bereavement sessions are also offered for families who have experienced the death of a child. Learn more at http://www.campsunshine.org.

Who can go?

Anyone with FA and his/her family are welcome and invited to apply. People from all countries are welcome. Newly diagnosed families are especially encouraged to apply. There is no cost to attend other than travel expenses. Travel scholarships are available through FARF to assist with these expenses.

How do I apply?

Find the application below. We also send out an invitation via email in January of each year. You can also .(JavaScript must be enabled to view this email address) with any questions or if you would like to apply for a travel scholarship.

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