Family Meeting

FAGroupCamp Kids, teens & adults with FA at the 2018 Family Meeting

What is the Family Meeting?

The Family Meeting is a unique event that allows families registered with FARF to attend presentations by researchers and physicians who are active in the research and treatment of Fanconi anemia (FA), to attend support groups for help in coping with the disease, to voluntarily participate in FA research projects, and to connect with other families affected by FA. Camp Sunshine volunteers provide a fun-filled program for children with FA and their siblings.

What is Camp Sunshine?

Camp Sunshine provides retreats combining respite, recreation, and support, while enabling hope and promoting joy, for children with life-threatening illnesses and their families through the various stages of a child’s illness. The program is free of charge to families and includes on-site medical and psychosocial support. Bereavement sessions are also offered for families who have experienced the death of a child. Learn more at http://www.campsunshine.org.

Who can go?

Anyone with FA and his/her family are welcome and invited to apply. There is no age limit. People from all countries are welcome. Newly diagnosed families are especially encouraged to apply. There is no cost to attend other than travel expenses. Travel scholarships are available through FARF to assist with these expenses.

How do I apply?

We send out an invitation via email in January of each year. Information will also be posted on this webpage and on our Facebook page. You can also contact Family Services Director Marie Sweeten (.(JavaScript must be enabled to view this email address)) with any questions or if you would like to apply for a travel scholarship.

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