Financials & Organization

With your help, we are improving the quality of life for people with FA around the world by funding exceptional research. FARF believes in and practices transparency, accountability, and efficiency. We are always striving to become more efficient and to ensure your generous donations are put to best use by directing as much funding as possible to grants and to supporting our community. See the impact here.

FARF is a registered nonprofit organization. Our EIN # is 93-0995453.

Our Impact

Supporting research & education since 1989

We envision a future in which we can prevent and/or eliminate the primary causes of death and disability in people with FA, enabling them to live full and productive lives. To us, the best way to do this is by funding research. That’s why most of our budget is committed to research. We also support families by providing them with education and other services, like our annual family camp and our meeting for adults with FA.

Income and Expenses - 2021
Income and Expenses - 2021