Not only are these resources meant to serve people with FA and their families, they are also valuable to physicians, teachers, and family members. We encourage you to share them with anyone involved in the care of you or your loved one.
FA Educational Resources
Some quick references for an overview of FA and FARF. Informational videos provide more in-depth looks at some topics.
Related Resources & Organizations
There are many resources out there for people living with a rare disease, as well as caregivers and loved ones.
FA Family Newsletter
FARF publishes the FA Family Newsletter twice a year. The newsletter contains articles on FA-related research, scientific information about FA, and stories of families coping with FA.
Did you know there are podcasts out there focused on rare diseases? There’s even one specific to Fanconi anemia. We’ve pulled together a list of some podcasts you may want to check out.
Read about the experiences and reflections of people living with Fanconi anemia.