The Fanconi Anemia Research Fund (FARF) Virtual Tumor Board (VTB) is a panel of physicians experienced with treating patients with Fanconi anemia (FA) who volunteer their time to discuss difficult FA solid tumor cases and leukemia cases, to offer treatment guidance. The specialists on the panel have expertise in otolaryngology, hematology oncology, radiation oncology, and medical oncology.
The VTB was developed to provide support to individuals with FA and their treating physicians, who may have less experience with treating cancer in individuals with FA. Members of the FARF VTB meet virtually with patients’ treating physician(s) to review cases and provide input for treatment, from an FA-centric viewpoint. This process allows continued learning on how to best treat cancers associated with FA, which in turn may help others with similar diagnoses.
The FARF VTB program is most useful if you discuss the program with your treating physician immediately following a solid tumor or leukemia diagnosis. If you and your treating physician agree that soliciting advice from the VTB would be advantageous for developing a treatment plan, either you or your treating physician should contact FARF directly. We will then coordinate with your physician to set up a VTB meeting to review your case.
Your FARF contact is Andrea Ronan: andrea@fanconi.org or 541-687-4658 ext 402.
The physicians on the FARF VTB generously volunteer their time for this service, which FARF offers at no cost to you. The VTB may review US-based or international cases.
If your FA patient has been diagnosed with a solid tumor and you’d like to review the case with the VTB members, please send a brief synopsis of the patient’s cancer-related medical history, along with the timeframe in which you would like the VTB to occur, to Andrea Ronan: andrea@fanconi.org or 541-687-4658 ext 402. We will provide you with more details on the process and coordinate the meeting with the VTB members.
Julie Bauman, MD, MPH - Director, GW Cancer Center – The George Washington University
Barbara Burtness, MD - Professor of Medicine, Medical Oncology - Yale University School of Medicine
Stella Davies, MBBS, PhD, MRCP - Director, Division of Bone Marrow Transplantation and Immune Deficiency - Cincinnati Children’s
Jennifer Grandis, MD - American Cancer Society Professor, Otolaryngology - University of California, San Francisco
Joel Greenberger, MD – Professor, Radiation Oncology - University of Pittsburgh
Patrick Ha, MD - Chief, Head and Neck Oncologic Surgery - University of California, San Francisco
Kathryn Pennington, MD – Assistant Professor, Gynecologic oncology - University of Washington
Mark Robson, MD – Chief, Breast Medicine Service – Memorial Sloan Kettering
Sarah Temkin, MD - Associate Director for Clinical Research, NIH Office of Research on Women’s Health – National Institutes of Health
John Wagner, MD - Professor, Department of Pediatrics, Division of Blood and Marrow Transplant & Cellular Therapy - University of Minnesota
Sue Yom, MD, PhD - Professor, Radiation Oncology - University of California, San Francisco