The Fanconi Anemia Research Fund (FARF) Virtual Tumor Board (VTB) is a panel of physicians experienced with treating patients with Fanconi anemia (FA) who volunteer their time to discuss difficult FA solid tumor cases and offer treatment guidance. The specialists on the panel have expertise in otolaryngology, hematology oncology, radiation oncology, and medical oncology.
The VTB was developed to provide support to individuals with FA and their treating physicians, who may have less experience with treating cancer in individuals with FA. Members of the FARF VTB meet virtually with patients’ treating physician(s) to review cases and provide input for treatment, from an FA-centric viewpoint. This process allows continued learning on how to best treat cancers associated with FA, which in turn may help others with similar diagnoses.
The FARF VTB program is most useful if you discuss the program with your treating physician immediately following a solid tumor diagnosis. If you and your treating physician agree that soliciting advice from the VTB would be advantageous for developing a treatment plan, either you or your treating physician should contact FARF directly. We will then coordinate with your physician to set up a VTB meeting to review your case.
The physicians on the FARF VTB generously volunteer their time for this service, which FARF offers at no cost to you. The VTB may review US-based or international cases.
Julie Bauman, MD, MPH - Professor of Medicine, Hematology and Oncology - University of Arizona College of Medicine
Barbara Burtness, MD - Professor of Medicine, Medical Oncology - Yale University School of Medicine
Stella Davies, MBBS, PhD, MRCP - Director, Division of Bone Marrow Transplantation and Immune Deficiency - Cincinnati Children’s
Susannah Ellsworth, MD - Associate Professor, Radiation Oncology - University of Pittsburgh Medical Center
Jennifer Grandis, MD - American Cancer Society Professor, Otolaryngology - University of California, San Francisco
Joel Greenberger, MD - Professor and chair of the Department of Radiation Oncology - University of Pittsburgh Medical Center
Patrick Ha, MD - Chief, Head and Neck Oncologic Surgery - University of California, San Francisco
Kathryn Pennington, MD - Gynecologic oncology faculty member - University of Washington
Sarah Schwarzenberg, MD - Professor, Department of Pediatrics, Division of Pediatric Gastroenterology, Hepatology and Nutrition - University of Minnesota
John Wagner, MD - Professor, Department of Pediatrics, Division of Blood and Marrow Transplant & Cellular Therapy - University of Minnesota
Sue Yom, MD, PhD - Professor, Radiation Oncology - University of California, San Francisco