Community News


New FA Research Funded

New FA Research Funded

Jul 12th, 2018

​We are excited to fund four new research projects, two targeting the blood problems in Fanconi anemia, and two focusing on understanding cancer in FA.

Read More >

Topics: Announcements

FARF Tank

FARF Tank

Jun 19th, 2018

Do you have an idea for a research project and need funding to develop it? We want to hear about it. Introducing FARF Tank: a chance to win a $10,000 grant for your project

Read More >

Topics: Announcements

Head and Neck Squamous Cell Carcinoma: Developing Guidelines to Maximize Therapeutic Outcomes

HNSCC in FA Meeting

Jun 13th, 2018

Clinical and scientific experts met in Pittsburgh to discuss HNSCC in FA and how to improve prevention and treatment outcomes.

Read More >

Topics: Announcements

Dr. Sudhir Borgonha Joins FARF as Translational Science Director

Dr. Sudhir Borgonha Joins FARF as Translational Science Director

Jun 13th, 2018

Dr. Borgonha will lead FA translational science efforts, including the development of a clinical registry and biobank.

Read More >

Topics: Announcements

No Longer an Orphan

No Longer an Orphan

By: Sharon Schuman, PhD | Jun 12th, 2018

FA was once an orphan disease that no one knew anything about, except that it was rare, it affected the blood and it was fatal. Thanks to 30 years of research, this is no longer the case.

Read More >

Topics: Stories

9th Fanconi Anemia Day Raises $52,000

9th Fanconi Anemia Day Raises $52,000

Jun 7th, 2018

This May, 30 FA families and members of the FA community held fundraisers all over the country and beyond to raise funds for research & family services.

Read More >

Topics: Stories