Community News

2023 Research Updates
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2023 Research Updates

Apr 10th, 2023

On this page you’ll find the latest updates on FARF-funded research and activities, updated on an ongoing basis.

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Topics: Announcements



Walker’s Journey

Walker’s Journey

By: Kara Giandomenico | Jan 18th, 2024

Walker's fight and strength made him the definition of heroic. On this day, I tell Walker's story about his beautiful soul, his courage and the will to smile under any circumstances.

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Topics: Stories

Scientist Spotlight: Joseph Hallett

Scientist Spotlight: Joseph Hallett

Jan 18th, 2024

Meet Joseph Hallett, whose work aims to better understand radiation in FA, and ultimately inform its better use in clinical practice.

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Topics: Stories

Scientist Spotlight: Jacob Corn

Scientist Spotlight: Jacob Corn

Nov 17th, 2023

Learn about FA researcher Jacob Corn, who is working on gene editing in FA

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Topics: Stories

Supporters ‘Endure for a Cure’ with a 500-Mile Bike Race

Supporters ‘Endure for a Cure’ with a 500-Mile Bike Race

Oct 31st, 2023

This summer, a remarkable team of individuals united as “Endure for a Cure” to achieve something truly extraordinary: bike over 500 miles while raising $130,000 for research!

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Topics: Stories

Ana Tabar Receives the 2023 Winn Byrd Award for Adults with FA

Ana Tabar Receives the 2023 Winn Byrd Award for Adults with FA

Oct 5th, 2023

Ana grew up in the Dominican Republic, and in response to the needs for access to medication, diagnosis, treatment, and education for those with FA there, she established Un Corazon por Fanconi.

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Topics: Stories