Community News


Our Faith and Fanconi Anemia

Our Faith and Fanconi Anemia

By: Dexter Sherrell | Jun 2nd, 2021

Thought this journey, we have learned that not only is God able to help us by faith, but that it is also very important to have a good and steady support system in place such as FARF and the FAmily.

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Our Warrior, Agustina

Our Warrior, Agustina

By: Cecilia Cordoba | May 18th, 2021

Agus is a warrior who is full of life. As parents, it is extremely painful to watch your child fight these battles. Positivity, acceptance, and love seem to be the recipe that holds it all together.

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Scientist Spotlight: Jordi  Minguillon

Scientist Spotlight: Jordi Minguillon

May 17th, 2021

Learn more about Dr. Minguillon, who works on drug screening & cancer therapeutics in FA.

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Leo’s Story

Leo’s Story

By: Neftalí Bravo Saludes | May 6th, 2021

From the moment of diagnosis, I see life from a different perspective. Uncertainty makes us nervous and anxious, but when it comes to your day-to-day life, you must learn how to live with it.

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Joanne’s Legacy

Joanne’s Legacy

Apr 21st, 2021

"Even though we are all FA warriors, we all have different characteristics. With the help of FARF, I feel like I have an extended family and great support" - Joanne

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Loving Someone Rare

Loving Someone Rare

By: Allison Breininger | Apr 7th, 2021

My husband is one of the 30 million Americans living with a rare disease. Our disease is rare, but compassion for our loved ones and ourselves doesn’t have to be.

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Topics: Stories