Community News


A diagnosis of FA amidst a global pandemic

A diagnosis of FA amidst a global pandemic

By: Chris Payne | Sep 10th, 2020

Without a doubt, 2020 has been one of the most difficult and challenging years our family has faced. With Covid-19 changing the world as we know it, we have faced our own battle with an FA diagnosis.

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Topics: Stories

Toxic Positivity: It’s okay not to be okay

Toxic Positivity: It’s okay not to be okay

Aug 19th, 2020

The current cultural pressure to maintain an upbeat and positive outlook in the face of a health crisis is 1) nothing new to FA families; and 2) can actually be detrimental to one’s wellbeing.

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Topics: Announcements

Scientist Spotlight: Agnieszka Czechowicz

Scientist Spotlight: Agnieszka Czechowicz

Aug 14th, 2020

Learn more about Dr. Czechowicz, who works on improving bone marrow transplants & gene therapy in FA

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Topics: Stories

Caregiver Profile: Mary Tanner

Caregiver Profile: Mary Tanner

Aug 4th, 2020

An interview with Mary, mother to an adult son living with Fanconi anemia

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Topics: Stories

Fundraising Wins: 2019-2020

Fundraising Wins: 2019-2020

Jul 28th, 2020

We've had a great year in fundraising, thanks to our dedicated family fundraisers and our generous donors!

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Topics: Announcements

Our Journey to Emma

Our Journey to Emma

By: Keith Loo | Jul 14th, 2020

FA is unique to every individual and every family. There are many dark moments throughout each of our journeys. However, there are bright moments as well, even during some of the darkest times.

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Topics: Stories