Community News


Robin Lewis receives 2021 Winn/Byrd Award for Adults with FA

Robin Lewis receives 2021 Winn/Byrd Award for Adults with FA

Sep 8th, 2021

Robin and his wife, Jolandie, started Numinous Expeditions in 2017. Numinous Expeditions is a nonprofit that carries out environmental, humanitarian, and animal welfare projects.

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Topics: Announcements

Donors Enable Change Around the World

Donors Enable Change Around the World

Jul 20th, 2021

So far, seven international support grants have been awarded and programs are underway in nine countries as a result of donor contributions.

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Topics: Announcements

30 Years of Living with FA

30 Years of Living with FA

By: Tahara Jackson | Jul 14th, 2021

For a long time, I tried to run from the FA diagnosis, but I obviously could not. At 30 years old, I feel like I’m on the better side of FA now.

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Topics: Stories

Our Faith and Fanconi Anemia

Our Faith and Fanconi Anemia

By: Dexter Sherrell | Jun 2nd, 2021

Thought this journey, we have learned that not only is God able to help us by faith, but that it is also very important to have a good and steady support system in place such as FARF and the FAmily.

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Topics: Stories

Our Warrior, Agustina

Our Warrior, Agustina

By: Cecilia Cordoba | May 18th, 2021

Agus is a warrior who is full of life. As parents, it is extremely painful to watch your child fight these battles. Positivity, acceptance, and love seem to be the recipe that holds it all together.

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Topics: Stories

Scientist Spotlight: Jordi  Minguillon

Scientist Spotlight: Jordi Minguillon

May 17th, 2021

Learn more about Dr. Minguillon, who works on drug screening & cancer therapeutics in FA.

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Topics: Stories