Community News


A gene therapy based clinical trial for Fanconi anemia patients offers its first successful results

A gene therapy based clinical trial for Fanconi anemia patients offers its first successful results

Sep 9th, 2019

FA researchers in Spain have published results from their gene therapy trial, showing that gene-corrected hematopoietic stem cells engrafted in the bone marrow of four people with FA.

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Topics: Announcements

Introducing the FAdult Council

Introducing the FAdult Council

Sep 5th, 2019

To better understand other issues facing the adult FA population, FARF formed an advisory council of adults living with FA. This group will provide input as FARF plans activities and policies.

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Topics: Announcements

Genotype-phenotype associations in Fanconi anemia: A literature review

Genotype-phenotype associations in Fanconi anemia: A literature review

By: Blanche P. Alter, FA researcher | Aug 21st, 2019

Publication spotlight on Fanconi anemia from September 2019's Blood Review scientific journal

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The Family Meeting in Photos

The Family Meeting in Photos

Aug 13th, 2019

Each year, more than 50 FA families gathering Maine to connect, learn, and have fun. See the highlights from 2019's Family Meeting.

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Topics: Announcements

How Our Family Channeled Grief Into Hope

How Our Family Channeled Grief Into Hope

By: Zachary and Rachel Gratz-Lazarus | Aug 13th, 2019

Well before her diagnosis of FA, our daughter was a model in resiliency for us. When she was finally born, we called her Mighty Mouse. Small, but resolute. Our model of resilience. Our Norah.

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Topics: Stories

Now hiring Family Services Director

Now hiring Family Services Director

Jul 22nd, 2019

Join a team dedicated to advancing research and supporting families affected by FA. Learn more about becoming FARF's Family Services Director.

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