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 FARF co-founder speaks at 30th Symposium
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FARF co-founder speaks at 30th Symposium

Jan 14th, 2019

Lynn Frohnmayer, FARF co-founder, has lost all three daughters to Fanconi anemia. At the 30th FA Scientific Symposium, she spoke about her family's story and three decades of progress in FA research.

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Topics: Stories


Could anticancer drugs work in FA?

Could anticancer drugs work in FA?

Feb 14th, 2019

People with FA have a 500- to 700-fold increased risk of developing head and neck tumors when compared to the general population. Alternative therapeutic options are desperately needed.

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Topics: Announcements

30th Anniversary T-Shirt Contest

30th Anniversary T-Shirt Contest

Feb 13th, 2019

To celebrate FARF’s 30th anniversary, we are asking our community to help design an original, limited edition FARF t-shirt.

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Topics: Announcements

Key Takeaways from the 30th Scientific Symposium

Key Takeaways from the 30th Scientific Symposium

Jan 15th, 2019

More than 250 FA researchers and clinicians gathered in late 2018 to share updates in FA research and clinical care. Here are the key takeaways.

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Topics: Announcements

 FARF co-founder speaks at 30th Symposium

FARF co-founder speaks at 30th Symposium

Jan 14th, 2019

Lynn Frohnmayer, FARF co-founder, has lost all three daughters to Fanconi anemia. At the 30th FA Scientific Symposium, she spoke about her family's story and three decades of progress in FA research.

Read More >

Topics: Stories

30th Scientific Symposium in Photos

30th Scientific Symposium in Photos

Jan 9th, 2019

The 30th Symposium featured new and exciting sessions and grant opportunities, inspiring talks by adults with FA, and celebration of progress in FA research and treatments over 30 years.

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Topics: Announcements

Heart of Celebration

Heart of Celebration

By: Mary-Beth Johnson | Jan 7th, 2019

Mary-Beth Johnson is a foodie and fantastic cook, a wife, sister and daughter, and a self-proclaimed over-sharer. She also lives with Fanconi anemia.

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Topics: Stories