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FARF Announces Head & Neck Cancer Collaboration with Stand Up To Cancer
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FARF Announces Head & Neck Cancer Collaboration with Stand Up To Cancer

Jan 20th, 2021

We've teamed up with Stand Up To Cancer and three partner organizations to fund $3.25 million in grants for treatment of FA-related head and neck cancer.

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Topics: Announcements


Joanne’s Legacy

Joanne’s Legacy

Apr 21st, 2021

"Even though we are all FA warriors, we all have different characteristics. With the help of FARF, I feel like I have an extended family and great support" - Joanne

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Topics: Stories

Loving Someone Rare

Loving Someone Rare

By: Allison Breininger | Apr 7th, 2021

My husband is one of the 30 million Americans living with a rare disease. Our disease is rare, but compassion for our loved ones and ourselves doesn’t have to be.

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Topics: Stories

My Joel

My Joel

By: Natalia Gimenez | Mar 30th, 2021

When I think back on our journey, it is so clear that quality of life is not only determined by one’s health, but that it is often determined by the joy and love that you let into your heart.

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Topics: Stories

Covid-19 Vaccine & Fanconi Anemia

Covid-19 Vaccine & Fanconi Anemia

Jan 27th, 2021

In December 2020, two COVID-19 vaccines were approved by the FDA in the United States. What does this mean for people with Fanconi anemia and their families?

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Topics: Announcements

Our Journey with FA and Brain Lesions

Our Journey with FA and Brain Lesions

By: Mary Eilleen Cleary | Jan 26th, 2021

Eternal hope. Of all the characteristics that Fanconi anemia (FA) may or may not bring out in any of us, this is the one that will help us the most.

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Topics: Stories

FARF Announces Head & Neck Cancer Collaboration with Stand Up To Cancer

FARF Announces Head & Neck Cancer Collaboration with Stand Up To Cancer

Jan 20th, 2021

We've teamed up with Stand Up To Cancer and three partner organizations to fund $3.25 million in grants for treatment of FA-related head and neck cancer.

Read More >

Topics: Announcements