Community News


Words of encouragement for everyone transitioning from pediatric to adult care

Words of encouragement for everyone transitioning from pediatric to adult care

By: Mary-Beth Johnson | Feb 20th, 2020

Growing up and taking control of your care is one of the most important - and challenging - steps you will take in adulthood.

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Topics: Stories

What’s the most important relationship you have in the FA community?

What’s the most important relationship you have in the FA community?

By: Duncan Nunes | Feb 14th, 2020

A reflection on the personal connections that define us.

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Topics: Stories

Alan D’Andrea Receives Lifetime Achievement Award

Alan D’Andrea Receives Lifetime Achievement Award

Feb 13th, 2020

FARF has existed for more than 30 years, and in that time, few researchers can say they’ve dedicated their career to studying Fanconi anemia. Dr. Alan D’Andrea is one of those researchers.

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Topics: Announcements

Central nervous system abnormalities in Fanconi anemia

Central nervous system abnormalities in Fanconi anemia

Jan 3rd, 2020

FA is associated with bone marrow failure, cancer predisposition, and congenital abnormalities. What do we know about central nervous system abnormalities?

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Topics: Announcements

Research Update: Cancer in FA

Research Update: Cancer in FA

Jan 2nd, 2020

Read updates about FA cancer research shared at the 2019 FARF Scientific Symposium

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Topics: Announcements

Bone Marrow Failure: Clinical Trials

Bone Marrow Failure: Clinical Trials

Jan 2nd, 2020

An update on three FA clinical trials presented at the 2019 FARF Scientific Symposium

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Topics: Announcements