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Now Recruiting: Study to improve early detection of cancer and clinical care
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Now Recruiting: Study to improve early detection of cancer and clinical care

Apr 7th, 2023

Participate in the NCI Fanconi Anemia Cancer Screening Study and help us improve early detection of cancer and clinical care of people with Fanconi anemia.

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Topics: Announcements


My (Continued) Journey with Fanconi Anemia Families

My (Continued) Journey with Fanconi Anemia Families

By: Nancy Cincotta | Apr 10th, 2023

I have had the distinct honor of watching many of you in the FA community grow up, embrace life, and deal with whatever FA brings.

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Topics: Stories

2023 Research Updates

2023 Research Updates

Apr 10th, 2023

On this page you’ll find the latest updates on FARF-funded research and activities, updated on an ongoing basis.

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Topics: Announcements

Now Recruiting: Study to improve early detection of cancer and clinical care

Now Recruiting: Study to improve early detection of cancer and clinical care

Apr 7th, 2023

Participate in the NCI Fanconi Anemia Cancer Screening Study and help us improve early detection of cancer and clinical care of people with Fanconi anemia.

Read More >

Topics: Announcements

Collective Grief in the FA Community

Collective Grief in the FA Community

Apr 6th, 2023

As we remember all of those we’ve lost, it’s important to acknowledge the shockwave that is grief, which can reverberate throughout the entire community during times of loss.

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Topics: Announcements, Wellness, Grief

Naomi the Warrior

Naomi the Warrior

By: Amber McDougall | Mar 20th, 2023

Looking forward, we have hope. We are not naïve to the potential cancers that may be in Naomi’s future, but the amount of dedication to research and progress that keeps being made is encouraging.

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Topics: Stories

Living Life to the Fullest as an Adult with FA

Living Life to the Fullest as an Adult with FA

By: Andie Kalemba | Mar 15th, 2023

Life is too short to focus on the negatives and frustrations. It’s important to have fun, take advantage of new opportunities, and remember what matters in life.

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Topics: Stories