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Show Us How You FA

Apr 1st, 2019

International FA month is May 2019. This is an international fundraising & awareness campaign created by FA families. FA means #FindAnswers and #FightAlways. Get involved today!

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Topics: Announcements


Aldehydes inhibitor may help protect stem cells

Aldehydes inhibitor may help protect stem cells

Apr 10th, 2019

Research has shown that aldehydes cause DNA damage and increase the potential for bone marrow failure. A recent study investigates whether a small molecule activator could help.

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Topics: Announcements

30th T-Shirt Contest: VOTE NOW!

30th T-Shirt Contest: VOTE NOW!

Apr 4th, 2019

We asked you to send us your designs for the 30th anniversary FARF shirt. Vote for your favorite of the six finalists!

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Topics: Announcements

Show Us How You FA

Show Us How You FA

Apr 1st, 2019

International FA month is May 2019. This is an international fundraising & awareness campaign created by FA families. FA means #FindAnswers and #FightAlways. Get involved today!

Read More >

Topics: Announcements

Adulting with Fanconi Anemia

Adulting with Fanconi Anemia

By: Jasmine Bennetsen | Mar 19th, 2019

We first learned something was wrong in 2004. I was a normal, healthy kid until I went to my pediatrician for my 13-year-old booster shot and blood draw. That was the first sign something was off.

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Topics: Stories

How might we apply cancer-fighting strategies from the general population to the FA population?

How might we apply cancer-fighting strategies from the general population to the FA population?

Mar 18th, 2019

To fast-track therapies for people with Fanconi anemia (FA), it’s often best to start by examining progress that’s already been made in the general population.

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Topics: Announcements

Nunca más huérfana

Nunca más huérfana

By: Sharon Schuman, PhD | Mar 5th, 2019

La Anemia de Fanconi se consideraba una enfermedad huérfana por lo poco frecuente y lo poco que se conocían sus causas, sus conexiones a otras enfermedades, y sobre la existencia de tratamientos.

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Topics: Stories