Community News


Robin Lewis receives 2021 Winn/Byrd Award for Adults with FA

Robin Lewis receives 2021 Winn/Byrd Award for Adults with FA

Sep 8th, 2021

Robin and his wife, Jolandie, started Numinous Expeditions in 2017. Numinous Expeditions is a nonprofit that carries out environmental, humanitarian, and animal welfare projects.

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Topics: Announcements

Donors Enable Change Around the World

Donors Enable Change Around the World

Jul 20th, 2021

So far, seven international support grants have been awarded and programs are underway in nine countries as a result of donor contributions.

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Topics: Announcements

Covid-19 Vaccine & Fanconi Anemia

Covid-19 Vaccine & Fanconi Anemia

Jan 27th, 2021

COVID-19 vaccines have been approved by the FDA in the United States. What does this mean for people with Fanconi anemia and their families?

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Topics: Announcements

FARF Announces Head & Neck Cancer Collaboration with Stand Up To Cancer

FARF Announces Head & Neck Cancer Collaboration with Stand Up To Cancer

Jan 20th, 2021

We've teamed up with Stand Up To Cancer and three partner organizations to fund $3.25 million in grants for treatment of FA-related head and neck cancer.

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Topics: Announcements

Research Update Winter 2020: Cancer, Fertility, Bone Marrow Failure

Research Update Winter 2020: Cancer, Fertility, Bone Marrow Failure

Dec 14th, 2020

This report is an overview of research shared at the 2020 Fanconi Anemia Research Fund Scientific Symposium covering three main topics: solid tumors, fertility, and bone marrow failure.

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Topics: Announcements

How to Be Present for Your Friends This Holiday Season

How to Be Present for Your Friends This Holiday Season

By: Allison Breininger | Dec 7th, 2020

Life can be hard this time of year. While for some, twinkly lights, eggnog, and carols help lighten the mood, for others the holiday season feels like a time of mourning and struggling.

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Topics: Announcements