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Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia
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Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia

Sep 18th, 2019

Research study is open to participants worldwide to advance understanding and treatments for the rare disease Fanconi anemia.

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Topics: Announcements


Scientist Spotlight: Paula Rio

Scientist Spotlight: Paula Rio

Oct 31st, 2019

Learn more about Dr. Paula Rio, who works on gene therapy and gene editing in FA

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Fanconi Anemia Clinical Trial Receives $1.7 million FDA Grant

Fanconi Anemia Clinical Trial Receives $1.7 million FDA Grant

Oct 21st, 2019

In early October, the U.S. Food and Drug Administration awarded 12 new clinical trial research grants to advance treatments for rare diseases. One of the trials is a phase 2 study of quercetin chemopr

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Topics: Announcements

Gene Therapy in Fanconi Anemia: An Update

Gene Therapy in Fanconi Anemia: An Update

Oct 16th, 2019

What is gene therapy in FA, what do we know now, and what's next?

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Topics: Announcements

European FA Organizations Form Umbrella Group

European FA Organizations Form Umbrella Group

Oct 16th, 2019

FA organizations in Europe are joining together to form a unified European Group.

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Topics: Announcements

Cultivating Wellbeing in Our Lives

Cultivating Wellbeing in Our Lives

Oct 9th, 2019

With a disease like Fanconi anemia, most of our attention is focused on physical health. Mental health is a component that may get overlooked, yet it is crucial to our overall wellbeing.

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Topics: Announcements

Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia

Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia

Sep 18th, 2019

Research study is open to participants worldwide to advance understanding and treatments for the rare disease Fanconi anemia.

Read More >

Topics: Announcements