Community News


How to Be Present for Your Friends This Holiday Season

How to Be Present for Your Friends This Holiday Season

By: Allison Breininger | Dec 7th, 2020

Life can be hard this time of year. While for some, twinkly lights, eggnog, and carols help lighten the mood, for others the holiday season feels like a time of mourning and struggling.

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Topics: Announcements

Toxic Positivity: It’s okay not to be okay

Toxic Positivity: It’s okay not to be okay

Aug 19th, 2020

The current cultural pressure to maintain an upbeat and positive outlook in the face of a health crisis is 1) nothing new to FA families; and 2) can actually be detrimental to one’s wellbeing.

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Topics: Announcements

Fundraising Wins: 2019-2020

Fundraising Wins: 2019-2020

Jul 28th, 2020

We've had a great year in fundraising, thanks to our dedicated family fundraisers and our generous donors!

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Topics: Announcements

We Will Do Better

We Will Do Better

Jun 5th, 2020

A message from FARF Executive Director Mark Quinlan in support of the Black community

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Topics: Announcements

Can brush biopsies identify pre-malignant or malignant oral lesions? Study results show yes

Can brush biopsies identify pre-malignant or malignant oral lesions? Study results show yes

May 11th, 2020

Researchers conducted a study to determine if oral pre-malignant and malignant lesions can be accurately identified using brush biopsies.

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Topics: Announcements

2020 Meeting Changes

2020 Meeting Changes

Apr 21st, 2020

Changes to the 2020 Scientific Symposium and Meeting for Adults with FA

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Topics: Announcements