This summer, a remarkable team of individuals united as “Endure for a Cure” to achieve something truly extraordinary: bike over 500 miles while raising $130,000 for research!
Ana grew up in the Dominican Republic, and in response to the needs for access to medication, diagnosis, treatment, and education for those with FA there, she established Un Corazon por Fanconi.
We are the Wisniewski family from Virginia. Our daughter Libi is 9-months-old and was diagnosed with Fanconi anemia (FA) only 30 days after she was born.
As any parent knows when dealing with a child struggling with a rare disease, your mental health takes a toll. That's why therapy is a monthly ritual in our household.