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Lynn Frohnmayer, FARF co-founder, has lost all three daughters to Fanconi anemia. At the 30th FA Scientific Symposium, she spoke about her family's story and three decades of progress in FA research.
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Mary-Beth Johnson is a foodie and fantastic cook, a wife, sister and daughter, and a self-proclaimed over-sharer. She also lives with Fanconi anemia.
What is it like to be the sibling of someone with Fanconi anemia? How is life as a sibling influenced by FA?
Adults with FA answer the questions of children with FA and their parents.
A Brazilian family's FA diagnosis and journey to Family Camp
What does it take to be a caregiver? Read an honest portrayal by the spouse of an adult with FA.