Looking forward, we have hope. We are not naïve to the potential cancers that may be in Naomi’s future, but the amount of dedication to research and progress that keeps being made is encouraging.
Life is too short to focus on the negatives and frustrations. It’s important to have fun, take advantage of new opportunities, and remember what matters in life.
Learn more about Dr. Sharon Savage, who works on cancer genetics and cancer syndromes like Fanconi anemia
We stay positive and try to live a normal life. We know we will still have good and bad days, but for now we are focus on the good.
Learn more about Dr. Wayne Crismani, who focuses on DNA repair, fertility, and metabolism in FA.
Before the FA Adult Retreat, I hadn't even categorized myself as a caregiver. It was a title I felt I hadn't truly earned. It felt silly to tell anyone I was drowning. How could I ask for help?