Lynn Frohnmayer, FARF co-founder, has lost all three daughters to Fanconi anemia. At the 30th FA Scientific Symposium, she spoke about her family's story and three decades of progress in FA research.
Lynn Frohnmayer, FARF co-founder, has lost all three daughters to Fanconi anemia. At the 30th FA Scientific Symposium, she spoke about her family's story and three decades of progress in FA research.
Mary-Beth Johnson is a foodie and fantastic cook, a wife, sister and daughter, and a self-proclaimed over-sharer. She also lives with Fanconi anemia.
What is it like to be the sibling of someone with Fanconi anemia? How is life as a sibling influenced by FA?
Adults with FA answer the questions of children with FA and their parents.
A Brazilian family's FA diagnosis and journey to Family Camp
What does it take to be a caregiver? Read an honest portrayal by the spouse of an adult with FA.