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Thought this journey, we have learned that not only is God able to help us by faith, but that it is also very important to have a good and steady support system in place such as FARF and the FAmily.
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Agus is a warrior who is full of life. As parents, it is extremely painful to watch your child fight these battles. Positivity, acceptance, and love seem to be the recipe that holds it all together.
Learn more about Dr. Minguillon, who works on drug screening & cancer therapeutics in FA.
From the moment of diagnosis, I see life from a different perspective. Uncertainty makes us nervous and anxious, but when it comes to your day-to-day life, you must learn how to live with it.
"Even though we are all FA warriors, we all have different characteristics. With the help of FARF, I feel like I have an extended family and great support" - Joanne
My husband is one of the 30 million Americans living with a rare disease. Our disease is rare, but compassion for our loved ones and ourselves doesn’t have to be.