Without a doubt, 2020 has been one of the most difficult and challenging years our family has faced. With Covid-19 changing the world as we know it, we have faced our own battle with an FA diagnosis.
Learn more about Dr. Czechowicz, who works on improving bone marrow transplants & gene therapy in FA
An interview with Mary, mother to an adult son living with Fanconi anemia
FA is unique to every individual and every family. There are many dark moments throughout each of our journeys. However, there are bright moments as well, even during some of the darkest times.
It seemed like the more research FARF funded and the more we learned, the more tantalizing was the possibility that somewhere out there might be a drug that could turn FA into a manageable condition.
The fear, concern, vigilance, and practices that the world is currently struggling to adopt have been part of your daily life and mine for years.