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FARF Announces Head & Neck Cancer Collaboration with Stand Up To Cancer
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FARF Announces Head & Neck Cancer Collaboration with Stand Up To Cancer

Jan 20th, 2021

We've teamed up with Stand Up To Cancer and three partner organizations to fund $3.25 million in grants for treatment of FA-related head and neck cancer.

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Topics: Announcements


Our Journey with FA and Brain Lesions

Our Journey with FA and Brain Lesions

By: Mary Eilleen Cleary | Jan 26th, 2021

Eternal hope. Of all the characteristics that Fanconi anemia (FA) may or may not bring out in any of us, this is the one that will help us the most.

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Topics: Stories

How You’re Making a Difference: Zach’s Story

How You’re Making a Difference: Zach’s Story

By: Mark Quinlan, Executive Director | Dec 15th, 2020

I want to share how you have made life a bit more hopeful and promising for people living with Fanconi anemia. In particular, I want to tell you about a 14-year-old boy from Illinois named Zach.

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Topics: Stories

A Ninja from the Desert

A Ninja from the Desert

By: Assila Al Marshoudi | Oct 27th, 2020

Until September 2017, we were a happy family of six. Well, our lovely happy little family tripped into a very heavy hurdle that involved the health of our beloved little ninja, Omar.

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Topics: Stories

A diagnosis of FA amidst a global pandemic

A diagnosis of FA amidst a global pandemic

By: Chris Payne | Sep 10th, 2020

Without a doubt, 2020 has been one of the most difficult and challenging years our family has faced. With Covid-19 changing the world as we know it, we have faced our own battle with an FA diagnosis.

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Topics: Stories

Scientist Spotlight: Agnieszka Czechowicz

Scientist Spotlight: Agnieszka Czechowicz

Aug 14th, 2020

Learn more about Dr. Czechowicz, who works on improving bone marrow transplants & gene therapy in FA

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Topics: Stories

Caregiver Profile: Mary Tanner

Caregiver Profile: Mary Tanner

Aug 4th, 2020

An interview with Mary, mother to an adult son living with Fanconi anemia

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Topics: Stories