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Do Something Amazing this Holiday Season
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Do Something Amazing this Holiday Season

Nov 19th, 2018

One awesome way to make an impact this holiday season is to be part of life-changing FA research.

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Topics: Announcements


The Sibling Journey

The Sibling Journey

By: Nancy Cincotta, LCSW, MSW, MPhil | Dec 7th, 2018

What is it like to be the sibling of someone with Fanconi anemia? How is life as a sibling influenced by FA?

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Topics: Stories

Scientist Spotlight: Agata Smogorzewska

Scientist Spotlight: Agata Smogorzewska

Nov 19th, 2018

Learn more about Dr. Smogorzewska of The Rockefeller University.

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Topics: Stories

Ask the Adults: Advice for the Younger FA Generation

Ask the Adults: Advice for the Younger FA Generation

By: Jack Timperley | Nov 14th, 2018

Adults with FA answer the questions of children with FA and their parents.

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Topics: Stories

Let’s Meet at the Porch?

Let’s Meet at the Porch?

By: Marcos Teixiera | Oct 23rd, 2018

A Brazilian family's FA diagnosis and journey to Family Camp

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Topics: Stories

What Does it Take to Be a Caregiver?

Caregiver Job Description

By: Allison Breininger | Oct 9th, 2018

What does it take to be a caregiver? Read an honest portrayal by the spouse of an adult with FA.

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Topics: Stories

Ten of the Best Things about FA Family Camp

Ten of the Best Things about FA Family Camp

Sep 6th, 2018

We asked FA families to share with us some of their favorite moments from 2018’s meeting. As memories were shared, we noticed some common themes that families seemed to appreciate most about camp.

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Topics: Stories