Community News


How You’re Making a Difference: Zach’s Story

How You’re Making a Difference: Zach’s Story

By: Mark Quinlan, Executive Director | Dec 15th, 2020

I want to share how you have made life a bit more hopeful and promising for people living with Fanconi anemia. In particular, I want to tell you about a 14-year-old boy from Illinois named Zach.

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Topics: Stories

A Ninja from the Desert

A Ninja from the Desert

By: Assila Al Marshoudi | Oct 27th, 2020

Until September 2017, we were a happy family of six. Well, our lovely happy little family tripped into a very heavy hurdle that involved the health of our beloved little ninja, Omar.

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Topics: Stories

2020 Recipient of the Winn/Byrd Award: Maria Isabel Rodríguez Ribero

2020 Recipient of the Winn/Byrd Award: Maria Isabel Rodríguez Ribero

Sep 21st, 2020

Congratulations to Maria Isabel Rodríguez Ribero! Maria is a mother, English teacher, master’s student, and community volunteer who lives in San Gil, Colombia.

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Topics: Stories

A diagnosis of FA amidst a global pandemic

A diagnosis of FA amidst a global pandemic

By: Chris Payne | Sep 10th, 2020

Without a doubt, 2020 has been one of the most difficult and challenging years our family has faced. With Covid-19 changing the world as we know it, we have faced our own battle with an FA diagnosis.

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Topics: Stories

Scientist Spotlight: Agnieszka Czechowicz

Scientist Spotlight: Agnieszka Czechowicz

Aug 14th, 2020

Learn more about Dr. Czechowicz, who works on improving bone marrow transplants & gene therapy in FA

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Topics: Stories

Caregiver Profile: Mary Tanner

Caregiver Profile: Mary Tanner

Aug 4th, 2020

An interview with Mary, mother to an adult son living with Fanconi anemia

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Topics: Stories