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We've teamed up with Stand Up To Cancer and three partner organizations to fund $3.25 million in grants for treatment of FA-related head and neck cancer.
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Adults with FA answer the questions of children with FA and their parents.
A Brazilian family's FA diagnosis and journey to Family Camp
What does it take to be a caregiver? Read an honest portrayal by the spouse of an adult with FA.
We asked FA families to share with us some of their favorite moments from 2018’s meeting. As memories were shared, we noticed some common themes that families seemed to appreciate most about camp.
FA was once an orphan disease that no one knew anything about, except that it was rare, it affected the blood and it was fatal. Thanks to 30 years of research, this is no longer the case.
This May, 30 FA families and members of the FA community held fundraisers all over the country and beyond to raise funds for research & family services.