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2023 Research Updates
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2023 Research Updates

Apr 10th, 2023

On this page you’ll find the latest updates on FARF-funded research and activities, updated on an ongoing basis.

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Topics: Announcements


Our Path Through Fanconi Anemia and Mental Resilience

Our Path Through Fanconi Anemia and Mental Resilience

By: Jen Aitkins | Aug 18th, 2023

As any parent knows when dealing with a child struggling with a rare disease, your mental health takes a toll. That's why therapy is a monthly ritual in our household.

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Topics: Stories

Scientist Spotlight: Ramon Garcia-Escudero

Scientist Spotlight: Ramon Garcia-Escudero

Aug 7th, 2023

Meet Dr. Ramon Garcia-Escudero, working on finding effective cancer treatments for FA

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Topics: Stories

The FA Connections that Changed Everything

The FA Connections that Changed Everything

By: Vicki Athens | Jul 10th, 2023

Our journey to the diagnosis of Fanconi anemia (FA) started in 1986 when we conceived a child via In vitro Fertilization (IVF). In my heart of hearts, I knew something was wrong.

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Topics: Stories

Scientist Spotlight: Tai Nguyen

Scientist Spotlight: Tai Nguyen

Jun 16th, 2023

Learn about Tai Nguyen, cancer and CRISPR researcher working on FA at the basic science level

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Topics: Stories

From Dream to Reality: Empowering Parenthood Through Egg Donation and Surrogacy

From Dream to Reality: Empowering Parenthood Through Egg Donation and Surrogacy

By: Ana Tabar | Jun 2nd, 2023

I want to share that my dream of being a mother came true because three of the most powerful types of love I know came together: the love of a couple, the love of a sister, and the love of others.

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Topics: Stories

How Caregiver Coaching Helped Me

How Caregiver Coaching Helped Me

By: Sarah Borden | Jun 2nd, 2023

Having a child with Fanconi anemia can be isolating, even with a support system and a loving partner. As much as our family, friends, neighbors, and coworkers try to understand, they simply cannot.

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Topics: Stories