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Learn more about Dr. Minguillon, who works on drug screening & cancer therapeutics in FA.
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From the moment of diagnosis, I see life from a different perspective. Uncertainty makes us nervous and anxious, but when it comes to your day-to-day life, you must learn how to live with it.
"Even though we are all FA warriors, we all have different characteristics. With the help of FARF, I feel like I have an extended family and great support" - Joanne
My husband is one of the 30 million Americans living with a rare disease. Our disease is rare, but compassion for our loved ones and ourselves doesn’t have to be.
When I think back on our journey, it is so clear that quality of life is not only determined by one’s health, but that it is often determined by the joy and love that you let into your heart.
Eternal hope. Of all the characteristics that Fanconi anemia (FA) may or may not bring out in any of us, this is the one that will help us the most.