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FARF Announces Head & Neck Cancer Collaboration with Stand Up To Cancer
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FARF Announces Head & Neck Cancer Collaboration with Stand Up To Cancer

Jan 20th, 2021

We've teamed up with Stand Up To Cancer and three partner organizations to fund $3.25 million in grants for treatment of FA-related head and neck cancer.

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Topics: Announcements


Our Journey to Emma

Our Journey to Emma

By: Keith Loo | Jul 14th, 2020

FA is unique to every individual and every family. There are many dark moments throughout each of our journeys. However, there are bright moments as well, even during some of the darkest times.

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Topics: Stories

Exit Interview

Exit Interview

By: Sharon Schuman, PhD | Jun 17th, 2020

It seemed like the more research FARF funded and the more we learned, the more tantalizing was the possibility that somewhere out there might be a drug that could turn FA into a manageable condition.

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Topics: Stories

Caregiving During Covid

Caregiving During Covid

By: Allison Breininger | Jun 5th, 2020

The fear, concern, vigilance, and practices that the world is currently struggling to adopt have been part of your daily life and mine for years.

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Topics: Stories

One donor honors her brother’s memory and helps find a cure for her niece

One donor honors her brother’s memory and helps find a cure for her niece

May 26th, 2020

Through donating to FARF, I hope and pray to find a cure for Emily and all those who suffer from this terrible disease.

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Topics: Stories

Sewing Friendship and Love

Sewing Friendship and Love

By: Stephanie Griggs | Apr 9th, 2020

Several months ago, our daughter Bella undertook a very special sewing project: a t-shirt quilt. These weren't just any t-shirts, though. They were special and truly irreplaceable...

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Topics: Stories

Intoxicating Gratitude

Intoxicating Gratitude

By: Egil Dennerline | Mar 26th, 2020

Thirty years ago, I was told that I had an incurable terminal illness called Fanconi anemia (FA). Doctors told my father I wouldn't live into my 20s. I'm now 44.

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Topics: Stories