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Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia
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Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia

Sep 18th, 2019

Research study is open to participants worldwide to advance understanding and treatments for the rare disease Fanconi anemia.

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Topics: Announcements


Expeditions

Expeditions

By: Robin Lewis | Nov 6th, 2019

I’d like to tell you about a journey that changed my life forever. FA has taught me a couple of life lessons that you would expect to hear from a man late in his 90s.

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Topics: Stories

Now Hiring Research Program Manager

Now Hiring Research Program Manager

Nov 6th, 2019

The Research Program Manager is responsible for managing the administrative aspects of the FA Research Fund grant process and all FARF-directed research projects.

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Topics: Announcements

Scientist Spotlight: Paula Rio

Scientist Spotlight: Paula Rio

Oct 31st, 2019

Learn more about Dr. Paula Rio, who works on gene therapy and gene editing in FA

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Topics: Announcements

Fanconi Anemia Clinical Trial Receives $1.7 million FDA Grant

Fanconi Anemia Clinical Trial Receives $1.7 million FDA Grant

Oct 21st, 2019

In early October, the U.S. Food and Drug Administration awarded 12 new clinical trial research grants to advance treatments for rare diseases. One of the trials is a phase 2 study of quercetin chemopr

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Topics: Announcements

A Day at the 2019 FAdult Meeting with Mary-Beth

A Day at the 2019 FAdult Meeting with Mary-Beth

By: Mary-Beth Johnson | Oct 18th, 2019

At the FAdult Meeting in Chicago, Mary-Beth (a blogger & adult with FA), took over FARF's Facebook for a day and brought viewers behind the scenes at the meeting.

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Topics: Stories

Gene Therapy in Fanconi Anemia: An Update

Gene Therapy in Fanconi Anemia: An Update

Oct 16th, 2019

What is gene therapy in FA, what do we know now, and what's next?

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Topics: Announcements