Through donating to FARF, I hope and pray to find a cure for Emily and all those who suffer from this terrible disease.
Researchers conducted a study to determine if oral pre-malignant and malignant lesions can be accurately identified using brush biopsies.
Changes to the 2020 Scientific Symposium and Meeting for Adults with FA
Several months ago, our daughter Bella undertook a very special sewing project: a t-shirt quilt. These weren't just any t-shirts, though. They were special and truly irreplaceable...
Thirty years ago, I was told that I had an incurable terminal illness called Fanconi anemia (FA). Doctors told my father I wouldn't live into my 20s. I'm now 44.
If anything positive comes from any of this, I hope it is that by recognizing our complete helplessness towards mortality, we begin to look upon everything that surrounds us as a reflection of our own