Community News


Brandon’s FA Journey

Brandon’s FA Journey

By: Stephanie Febles | Jan 20th, 2023

We stay positive and try to live a normal life. We know we will still have good and bad days, but for now we are focus on the good.

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Topics: Stories

2022 Research Year In Review

2022 Research Year In Review

Dec 15th, 2022

In 2022, research moved full steam ahead with the creation of the FA Cancer Consortium as well as 2 new projects and ongoing programs.

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Topics: Announcements

Scientist Spotlight: Wayne Crismani

Scientist Spotlight: Wayne Crismani

Nov 9th, 2022

Learn more about Dr. Wayne Crismani, who focuses on DNA repair, fertility, and metabolism in FA.

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Topics: Stories

Am I a Caregiver?

Am I a Caregiver?

By: Kayla Letham | Oct 3rd, 2022

Before the FA Adult Retreat, I hadn't even categorized myself as a caregiver. It was a title I felt I hadn't truly earned. It felt silly to tell anyone I was drowning. How could I ask for help?

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Topics: Stories

Henry Fenyo Receives 2022 Winn/Byrd Award for Adults with FA

Henry Fenyo Receives 2022 Winn/Byrd Award for Adults with FA

Sep 16th, 2022

Henry is a recent high school graduate and is planning to attend St. John’s University in Queens, New York. He plans to earn a degree in Special Education with a minor in social justice.

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Topics: Stories

Scientist Spotlight: Katy Pennington

Scientist Spotlight: Katy Pennington

Aug 8th, 2022

Get to know Dr. Katy Pennington, a gynecologic oncologist whose research focuses on improving the lives of individuals with gynecologic cancer.

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Topics: Stories