Participate in the NCI Fanconi Anemia Cancer Screening Study and help us improve early detection of cancer and clinical care of people with Fanconi anemia.
We are the Wisniewski family from Virginia. Our daughter Libi is 9-months-old and was diagnosed with Fanconi anemia (FA) only 30 days after she was born.
As any parent knows when dealing with a child struggling with a rare disease, your mental health takes a toll. That's why therapy is a monthly ritual in our household.