Community News

Research Report Spring/Summer 2022: Six Grants Conclude as Five are Funded
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Research Report Spring/Summer 2022: Six Grants Conclude as Five are Funded

Jul 28th, 2022

Six grants wrapped up, as five more are funded. See the impact inside.

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Topics: Announcements


Let’s Meet at the Porch?

Let’s Meet at the Porch?

By: Marcos Teixiera | Oct 23rd, 2018

A Brazilian family's FA diagnosis and journey to Family Camp

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Topics: Stories

What Does it Take to Be a Caregiver?

Caregiver Job Description

By: Allison Breininger | Oct 9th, 2018

What does it take to be a caregiver? Read an honest portrayal by the spouse of an adult with FA.

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Topics: Stories

Ten of the Best Things about FA Family Camp

Ten of the Best Things about FA Family Camp

Sep 6th, 2018

We asked FA families to share with us some of their favorite moments from 2018’s meeting. As memories were shared, we noticed some common themes that families seemed to appreciate most about camp.

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Topics: Stories

Global Fanconi Anemia Gene Therapy Program Update

Global Fanconi Anemia Gene Therapy Program Update

By: Participating Institutions | Aug 22nd, 2018

Updates on the gene therapy trials open to people with FA on two continents.

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Topics: Announcements

New FA Research Funded

New FA Research Funded

Jul 12th, 2018

​We are excited to fund four new research projects, two targeting the blood problems in Fanconi anemia, and two focusing on understanding cancer in FA.

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Topics: Announcements

Head and Neck Squamous Cell Carcinoma: Developing Guidelines to Maximize Therapeutic Outcomes

HNSCC in FA Meeting

Jun 13th, 2018

Clinical and scientific experts met in Pittsburgh to discuss HNSCC in FA and how to improve prevention and treatment outcomes.

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Topics: Announcements