Community News


First Joel Walker Scientific Meeting Scheduled for April 9, 2018

First Joel Walker Scientific Meeting Scheduled for April 9, 2018

Feb 1st, 2018

Dr. Robert Ferris of the University of Pittsburgh will chair the meeting of 20+ head and neck experts from around the world.

Read More >

Topics: Announcements

Orion Marx Joins the Board of Directors

Orion Marx Joins the Board of Directors

Dec 15th, 2017

We are pleased to welcome longtime FARF supporter and FA parent Orion Marx to the Board of Directors.

Read More >

Topics: Announcements

Fanconi Anemia Research Fund Receives Grant to Expand Development Program

FARF Receives Grant

Dec 1st, 2017

The grant will allow FARF to generate greater income to support its mission to find effective treatments and a cure for FA and to provide education and support services to affected families worldwide.

Read More >

Topics: Announcements

Joel Walker Scientific Meeting Series Established

Joel Walker Scientific Meeting Series Established

Jul 1st, 2017

A generous bequest from Joel Walker's estate and on-going support from the Walker family make this important series of scientific meetings possible.

Read More >

Topics: Announcements

Running for Her Life

Running for Her Life

Apr 21st, 2017

Despite a rare, incurable disease, Amy Frohnmayer Winn ran joyfully through her limited time on earth, making the most of every mile—and every moment.

Read More >

Topics: Stories

Lynn Frohnmayer: ‘Devastating news’ now life’s mission

Lynn Frohnmayer: ‘Devastating news’ now life’s mission

Apr 15th, 2017

The daughter of the late University of Oregon President Dave Frohnmayer and his wife Lynn was one of their 3 daughters who inherited Fanconi Anemia, which can lead to bone marrow failure and cancer.

Read More >

Topics: Stories