Research study is open to participants worldwide to advance understanding and treatments for the rare disease Fanconi anemia.
Each year, more than 50 FA families gathering Maine to connect, learn, and have fun. See the highlights from 2019's Family Meeting.
Well before her diagnosis of FA, our daughter was a model in resiliency for us. When she was finally born, we called her Mighty Mouse. Small, but resolute. Our model of resilience. Our Norah.
Why should you think about going to the meetings for adults with Fanconi anemia? Hear from people who have been.
Do you have an idea for a research project and need funding to develop it? We want to hear about it. Introducing FARF Tank: a chance to win a $10,000 grant for your project
As Duncan's mom, I wish I could give him more days. I’d give him mine if I could. But that’s not possible. I can only resolve to give some of my time to try to raise funds for research.
Research has shown that aldehydes cause DNA damage and increase the potential for bone marrow failure. A recent study investigates whether a small molecule activator could help.