Community News


Show Us How You FA

Show Us How You FA

Apr 1st, 2019

International FA month is May 2019. This is an international fundraising & awareness campaign created by FA families. FA means #FindAnswers and #FightAlways. Get involved today!

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Topics: Announcements

Adulting with Fanconi Anemia

Adulting with Fanconi Anemia

By: Jasmine Bennetsen | Mar 19th, 2019

We first learned something was wrong in 2004. I was a normal, healthy kid until I went to my pediatrician for my 13-year-old booster shot and blood draw. That was the first sign something was off.

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Topics: Stories

How might we apply cancer-fighting strategies from the general population to the FA population?

How might we apply cancer-fighting strategies from the general population to the FA population?

Mar 18th, 2019

To fast-track therapies for people with Fanconi anemia (FA), it’s often best to start by examining progress that’s already been made in the general population.

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Topics: Announcements

Nunca más huérfana

Nunca más huérfana

By: Sharon Schuman, PhD | Mar 5th, 2019

La Anemia de Fanconi se consideraba una enfermedad huérfana por lo poco frecuente y lo poco que se conocían sus causas, sus conexiones a otras enfermedades, y sobre la existencia de tratamientos.

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Topics: Stories

Update: the FANCA Gene Therapy Trial

Update: the FANCA Gene Therapy Trial

Feb 22nd, 2019

An update on the international Fanconi anemia gene therapy trial

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News from the lab: the FA pathway and fertility

News from the lab: the FA pathway and fertility

By: Wayne Crismani, FA researcher | Feb 22nd, 2019

An update for families about the FA pathway and fertility

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Topics: Announcements