Dr. Robert Ferris of the University of Pittsburgh will chair the meeting of 20+ head and neck experts from around the world.
We are pleased to welcome longtime FARF supporter and FA parent Orion Marx to the Board of Directors.
The grant will allow FARF to generate greater income to support its mission to find effective treatments and a cure for FA and to provide education and support services to affected families worldwide.
A generous bequest from Joel Walker's estate and on-going support from the Walker family make this important series of scientific meetings possible.
Despite a rare, incurable disease, Amy Frohnmayer Winn ran joyfully through her limited time on earth, making the most of every mile—and every moment.
The daughter of the late University of Oregon President Dave Frohnmayer and his wife Lynn was one of their 3 daughters who inherited Fanconi Anemia, which can lead to bone marrow failure and cancer.