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Show Us How You FA

Apr 1st, 2019

International FA month is May 2019. This is an international fundraising & awareness campaign created by FA families. FA means #FindAnswers and #FightAlways. Get involved today!

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Topics: Announcements


30th Scientific Symposium in Photos

30th Scientific Symposium in Photos

Jan 9th, 2019

The 30th Symposium featured new and exciting sessions and grant opportunities, inspiring talks by adults with FA, and celebration of progress in FA research and treatments over 30 years.

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Topics: Announcements

Heart of Celebration

Heart of Celebration

By: Mary-Beth Johnson | Jan 7th, 2019

Mary-Beth Johnson is a foodie and fantastic cook, a wife, sister and daughter, and a self-proclaimed over-sharer. She also lives with Fanconi anemia.

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Topics: Stories

The Cancer Clock

The Cancer Clock

Dec 10th, 2018

Where were you the day your life changed forever? Do you remember how you felt the moment you knew nothing would ever be the same again?

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The Sibling Journey

The Sibling Journey

By: Nancy Cincotta, LCSW, MSW, MPhil | Dec 7th, 2018

What is it like to be the sibling of someone with Fanconi anemia? How is life as a sibling influenced by FA?

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Topics: Stories

Scientist Spotlight: Agata Smogorzewska

Scientist Spotlight: Agata Smogorzewska

Nov 19th, 2018

Learn more about Dr. Smogorzewska of The Rockefeller University.

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Topics: Announcements

Do Something Amazing this Holiday Season

Do Something Amazing this Holiday Season

Nov 19th, 2018

One awesome way to make an impact this holiday season is to be part of life-changing FA research.

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Topics: Announcements