Community News


Intoxicating Gratitude

Intoxicating Gratitude

By: Egil Dennerline | Mar 26th, 2020

Thirty years ago, I was told that I had an incurable terminal illness called Fanconi anemia (FA). Doctors told my father I wouldn't live into my 20s. I'm now 44.

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Topics: Stories

Finding Inner Peace in Chaos

Finding Inner Peace in Chaos

By: Kyle Tanner | Mar 20th, 2020

If anything positive comes from any of this, I hope it is that by recognizing our complete helplessness towards mortality, we begin to look upon everything that surrounds us as a reflection of our own

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Topics: Stories

Learning how to dance life

Learning how to dance life

By: Amy Frohnmayer Winn | Mar 20th, 2020

FA has been my greatest teacher. Through the fires of fear and loss, and the lens of a condensed time perspective, this illness has made me inescapably aware of the preciousness of life.

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Topics: Stories

Day 250+ in Quarantine

Day 250+ in Quarantine

By: Ashleigh Pinion | Mar 19th, 2020

We were so close to “normal,” but that got taken away with one phone call from our doctors.

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Topics: Stories

A Space for Caregivers

A Space for Caregivers

By: Allison Breininger | Mar 18th, 2020

One group of people we often think about but don’t often directly address is caregivers. All of the partners, parents, siblings, grandparents, and friends, we want you to know how vital you are.

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Topics: Stories

FARF Statement on COVID-19

FARF Statement on COVID-19

Mar 13th, 2020

The Fanconi Anemia Research Fund (FARF) is closely monitoring the updates regarding COVID-19, a respiratory illness caused by a new coronavirus, as well as potential implications on the FA community.

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Topics: Announcements