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2023 Research Updates
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2023 Research Updates

Apr 10th, 2023

On this page you’ll find the latest updates on FARF-funded research and activities, updated on an ongoing basis.

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Topics: Announcements


From Dream to Reality: Empowering Parenthood Through Egg Donation and Surrogacy

From Dream to Reality: Empowering Parenthood Through Egg Donation and Surrogacy

By: Ana Tabar | Jun 2nd, 2023

I want to share that my dream of being a mother came true because three of the most powerful types of love I know came together: the love of a couple, the love of a sister, and the love of others.

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Topics: Stories

How Caregiver Coaching Helped Me

How Caregiver Coaching Helped Me

By: Sarah Borden | Jun 2nd, 2023

Having a child with Fanconi anemia can be isolating, even with a support system and a loving partner. As much as our family, friends, neighbors, and coworkers try to understand, they simply cannot.

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Topics: Stories

My (Continued) Journey with Fanconi Anemia Families

My (Continued) Journey with Fanconi Anemia Families

By: Nancy Cincotta | Apr 10th, 2023

I have had the distinct honor of watching many of you in the FA community grow up, embrace life, and deal with whatever FA brings.

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Topics: Stories

2023 Research Updates

2023 Research Updates

Apr 10th, 2023

On this page you’ll find the latest updates on FARF-funded research and activities, updated on an ongoing basis.

Read More >

Topics: Announcements

Now Recruiting: Study to improve early detection of cancer and clinical care

Now Recruiting: Study to improve early detection of cancer and clinical care

Apr 7th, 2023

Participate in the NCI Fanconi Anemia Cancer Screening Study and help us improve early detection of cancer and clinical care of people with Fanconi anemia.

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Topics: Announcements

Collective Grief in the FA Community

Collective Grief in the FA Community

Apr 6th, 2023

As we remember all of those we’ve lost, it’s important to acknowledge the shockwave that is grief, which can reverberate throughout the entire community during times of loss.

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Topics: Announcements, Wellness, Grief