Community News

Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia
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Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia

Sep 18th, 2019

Research study is open to participants worldwide to advance understanding and treatments for the rare disease Fanconi anemia.

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The Family Meeting in Photos

The Family Meeting in Photos

Aug 13th, 2019

Each year, more than 50 FA families gathering Maine to connect, learn, and have fun. See the highlights from 2019's Family Meeting.

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How Our Family Channeled Grief Into Hope

How Our Family Channeled Grief Into Hope

By: Zachary and Rachel Gratz-Lazarus | Aug 13th, 2019

Well before her diagnosis of FA, our daughter was a model in resiliency for us. When she was finally born, we called her Mighty Mouse. Small, but resolute. Our model of resilience. Our Norah.

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Topics: Stories

Top 10 Reasons to Attend the Meeting for Adults with FA

Top 10 Reasons to Attend the Meeting for Adults with FA

May 22nd, 2019

Why should you think about going to the meetings for adults with Fanconi anemia? Hear from people who have been.

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Topics: Announcements

FARF Tank 2019

FARF Tank

May 21st, 2019

Do you have an idea for a research project and need funding to develop it? We want to hear about it. Introducing FARF Tank: a chance to win a $10,000 grant for your project

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Topics: Announcements

A Mother’s Appeal

A Mother’s Appeal

By: Nancy Nunes | May 20th, 2019

As Duncan's mom, I wish I could give him more days. I’d give him mine if I could. But that’s not possible. I can only resolve to give some of my time to try to raise funds for research.

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Aldehydes inhibitor may help protect stem cells

Aldehydes inhibitor may help protect stem cells

Apr 10th, 2019

Research has shown that aldehydes cause DNA damage and increase the potential for bone marrow failure. A recent study investigates whether a small molecule activator could help.

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Topics: Announcements