Community News


Loving Someone Rare

Loving Someone Rare

By: Allison Breininger | Apr 7th, 2021

My husband is one of the 30 million Americans living with a rare disease. Our disease is rare, but compassion for our loved ones and ourselves doesn’t have to be.

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Topics: Stories

My Joel

My Joel

By: Natalia Gimenez | Mar 30th, 2021

When I think back on our journey, it is so clear that quality of life is not only determined by one’s health, but that it is often determined by the joy and love that you let into your heart.

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Topics: Stories

Covid-19 Vaccine & Fanconi Anemia

Covid-19 Vaccine & Fanconi Anemia

Jan 27th, 2021

COVID-19 vaccines have been approved by the FDA in the United States. What does this mean for people with Fanconi anemia and their families?

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Topics: Announcements

Our Journey with FA and Brain Lesions

Our Journey with FA and Brain Lesions

By: Mary Eilleen Cleary | Jan 26th, 2021

Eternal hope. Of all the characteristics that Fanconi anemia (FA) may or may not bring out in any of us, this is the one that will help us the most.

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Topics: Stories

FARF Announces Head & Neck Cancer Collaboration with Stand Up To Cancer

FARF Announces Head & Neck Cancer Collaboration with Stand Up To Cancer

Jan 20th, 2021

We've teamed up with Stand Up To Cancer and three partner organizations to fund $3.25 million in grants for treatment of FA-related head and neck cancer.

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Topics: Announcements

How You’re Making a Difference: Zach’s Story

How You’re Making a Difference: Zach’s Story

By: Mark Quinlan, Executive Director | Dec 15th, 2020

I want to share how you have made life a bit more hopeful and promising for people living with Fanconi anemia. In particular, I want to tell you about a 14-year-old boy from Illinois named Zach.

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Topics: Stories