Lynn Frohnmayer, FARF co-founder, has lost all three daughters to Fanconi anemia. At the 30th FA Scientific Symposium, she spoke about her family's story and three decades of progress in FA research.
What does it take to be a caregiver? Read an honest portrayal by the spouse of an adult with FA.
We asked FA families to share with us some of their favorite moments from 2018’s meeting. As memories were shared, we noticed some common themes that families seemed to appreciate most about camp.
Updates on the gene therapy trials open to people with FA on two continents.
We are excited to fund four new research projects, two targeting the blood problems in Fanconi anemia, and two focusing on understanding cancer in FA.
Do you have an idea for a research project and need funding to develop it? We want to hear about it. Introducing FARF Tank: a chance to win a $10,000 grant for your project
Clinical and scientific experts met in Pittsburgh to discuss HNSCC in FA and how to improve prevention and treatment outcomes.