Community News


Nunca más huérfana

Nunca más huérfana

By: Sharon Schuman, PhD | Mar 5th, 2019

La Anemia de Fanconi se consideraba una enfermedad huérfana por lo poco frecuente y lo poco que se conocían sus causas, sus conexiones a otras enfermedades, y sobre la existencia de tratamientos.

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Topics: Stories

Update: the FANCA Gene Therapy Trial

Update: the FANCA Gene Therapy Trial

Feb 22nd, 2019

An update on the international Fanconi anemia gene therapy trial

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News from the lab: the FA pathway and fertility

News from the lab: the FA pathway and fertility

By: Wayne Crismani, FA researcher | Feb 22nd, 2019

An update for families about the FA pathway and fertility

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Topics: Announcements

Could anticancer drugs work in FA?

Could anticancer drugs work in FA?

Feb 14th, 2019

People with FA have a 500- to 700-fold increased risk of developing head and neck tumors when compared to the general population. Alternative therapeutic options are desperately needed.

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Topics: Announcements

30th Anniversary T-Shirt Contest

30th Anniversary T-Shirt Contest

Feb 13th, 2019

To celebrate FARF’s 30th anniversary, we are asking our community to help design an original, limited edition FARF t-shirt.

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Topics: Announcements

Key Takeaways from the 30th Scientific Symposium

Key Takeaways from the 30th Scientific Symposium

Jan 15th, 2019

More than 250 FA researchers and clinicians gathered in late 2018 to share updates in FA research and clinical care. Here are the key takeaways.

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Topics: Announcements