Research study is open to participants worldwide to advance understanding and treatments for the rare disease Fanconi anemia.
Well before her diagnosis of FA, our daughter was a model in resiliency for us. When she was finally born, we called her Mighty Mouse. Small, but resolute. Our model of resilience. Our Norah.
Why should you think about going to the meetings for adults with Fanconi anemia? Hear from people who have been.