I want to share how you have made life a bit more hopeful and promising for people living with Fanconi anemia. In particular, I want to tell you about a 14-year-old boy from Illinois named Zach.
This report is an overview of research shared at the 2020 Fanconi Anemia Research Fund Scientific Symposium covering three main topics: solid tumors, fertility, and bone marrow failure.
Life can be hard this time of year. While for some, twinkly lights, eggnog, and carols help lighten the mood, for others the holiday season feels like a time of mourning and struggling.
Until September 2017, we were a happy family of six. Well, our lovely happy little family tripped into a very heavy hurdle that involved the health of our beloved little ninja, Omar.
Without a doubt, 2020 has been one of the most difficult and challenging years our family has faced. With Covid-19 changing the world as we know it, we have faced our own battle with an FA diagnosis.
The current cultural pressure to maintain an upbeat and positive outlook in the face of a health crisis is 1) nothing new to FA families; and 2) can actually be detrimental to one’s wellbeing.