Community News


Running for Her Life

Running for Her Life

Apr 21st, 2017

Despite a rare, incurable disease, Amy Frohnmayer Winn ran joyfully through her limited time on earth, making the most of every mile—and every moment.

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Topics: Stories

Lynn Frohnmayer: ‘Devastating news’ now life’s mission

Lynn Frohnmayer: ‘Devastating news’ now life’s mission

Apr 15th, 2017

The daughter of the late University of Oregon President Dave Frohnmayer and his wife Lynn was one of their 3 daughters who inherited Fanconi Anemia, which can lead to bone marrow failure and cancer.

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Topics: Stories

Welcome Mark Quinlan, New Executive Director of the FA Research Fund

Welcome Mark Quinlan

Apr 1st, 2017

Mark comes to FARF with years of nonprofit and Executive Director experience.

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Topics: Announcements

Knight Family Funds Five Fanconi Anemia Research Projects in First Year

Knight Family Funds Five Fanconi Anemia Research Projects in First Year

Mar 22nd, 2017

In December 2015, Phil and Penny Knight pledged a gift of $10 million over ten years to support the David B. Frohnmayer Scientific Research Fund, a dedicated fund under the umbrella of the Fanconi Ane

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Topics: Announcements

Fanconi Anemia Research Fund Welcomes Four New Board Members

Fanconi Anemia Research Fund Welcomes Four New Board Members

Feb 1st, 2017

The Fanconi Anemia Research Fund is very pleased to welcome new members Rachel Altmann, Nancy Golden, Andre Hessels, and Bill McCorey to the Board of Directors.

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Topics: Announcements

Amy Frohnmayer Winn

Amy Frohnmayer Winn

Oct 1st, 2016

It is with profound sorrow that we announce the loss of a truly beautiful, fierce, and compassionate soul, Amy Frohnmayer Winn,

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Topics: Announcements