On this page you’ll find the latest updates on FARF-funded research and activities, updated on an ongoing basis.
Adults with FA answer the questions of children with FA and their parents.
A Brazilian family's FA diagnosis and journey to Family Camp
What does it take to be a caregiver? Read an honest portrayal by the spouse of an adult with FA.
We asked FA families to share with us some of their favorite moments from 2018’s meeting. As memories were shared, we noticed some common themes that families seemed to appreciate most about camp.
Updates on the gene therapy trials open to people with FA on two continents.
We are excited to fund four new research projects, two targeting the blood problems in Fanconi anemia, and two focusing on understanding cancer in FA.