On this page you’ll find the latest updates on FARF-funded research and activities, updated on an ongoing basis.
Despite a rare, incurable disease, Amy Frohnmayer Winn ran joyfully through her limited time on earth, making the most of every mile—and every moment.
The daughter of the late University of Oregon President Dave Frohnmayer and his wife Lynn was one of their 3 daughters who inherited Fanconi Anemia, which can lead to bone marrow failure and cancer.
Mark comes to FARF with years of nonprofit and Executive Director experience.
In December 2015, Phil and Penny Knight pledged a gift of $10 million over ten years to support the David B. Frohnmayer Scientific Research Fund, a dedicated fund under the umbrella of the Fanconi Ane
The Fanconi Anemia Research Fund is very pleased to welcome new members Rachel Altmann, Nancy Golden, Andre Hessels, and Bill McCorey to the Board of Directors.
It is with profound sorrow that we announce the loss of a truly beautiful, fierce, and compassionate soul, Amy Frohnmayer Winn,