Community News


2021 FARF Research Recap

2021 FARF Research Recap

Jan 19th, 2022

An overview of FARF research grants, events, and programs in 2021, made possible by amazing researchers, donors, and fundraisers!

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Our Unwavering Pursuit and the Long Road to Answers

Our Unwavering Pursuit and the Long Road to Answers

By: Katherine DiCamillo | Jan 11th, 2022

Hello, FAmily! We are the DiCamillos. I am the proud mother of four boys, one of which is diagnosed with Fanconi anemia (FA). Our road to discovering Levi was a boy with FA felt so long and winding.

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FARF Holds First Focus Meeting on Fanconi Anemia Neurological Syndrome

FARF Holds First Focus Meeting on Fanconi Anemia Neurological Syndrome

Dec 13th, 2021

Fanconi Anemia Neurological Syndrome (or FANS) is a term coined to describe central nervous system abnormalities that affect a subset of patients with FA.

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Scientist Spotlight: Sara Frias

Scientist Spotlight: Sara Frias

Nov 10th, 2021

Learn more about Dr. Frias, who works on cytogenetics and leads an FA team in Mexico

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Topics: Stories

Dr. Blanche Alter retires after more than 40 years in the Fanconi anemia field

Dr. Blanche Alter retires after more than 40 years in the Fanconi anemia field

Nov 8th, 2021

Since the 1980s, Dr. Alter has been a major contributor to the FA research field, especially in helping understand the risks and types of cancer in FA.

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Topics: Stories