Without a doubt, 2020 has been one of the most difficult and challenging years our family has faced. With Covid-19 changing the world as we know it, we have faced our own battle with an FA diagnosis.
The current cultural pressure to maintain an upbeat and positive outlook in the face of a health crisis is 1) nothing new to FA families; and 2) can actually be detrimental to one’s wellbeing.
Learn more about Dr. Czechowicz, who works on improving bone marrow transplants & gene therapy in FA
An interview with Mary, mother to an adult son living with Fanconi anemia
We've had a great year in fundraising, thanks to our dedicated family fundraisers and our generous donors!
FA is unique to every individual and every family. There are many dark moments throughout each of our journeys. However, there are bright moments as well, even during some of the darkest times.