At the FAdult Meeting in Chicago, Mary-Beth (a blogger & adult with FA), took over FARF's Facebook for a day and brought viewers behind the scenes at the meeting.
What is gene therapy in FA, what do we know now, and what's next?
FA organizations in Europe are joining together to form a unified European Group.
With a disease like Fanconi anemia, most of our attention is focused on physical health. Mental health is a component that may get overlooked, yet it is crucial to our overall wellbeing.
This summer, I had the honor of working in Dr. Alan D’Andrea’s lab at the Dana-Farber Cancer Institute in Boston. The people who research our disease are just as amazing as the people who have it.
Research study is open to participants worldwide to advance understanding and treatments for the rare disease Fanconi anemia.