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2023 Research Updates
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2023 Research Updates

Apr 10th, 2023

On this page you’ll find the latest updates on FARF-funded research and activities, updated on an ongoing basis.

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Topics: Announcements


Research Report Spring/Summer 2022: Six Grants Conclude as Five are Funded

Research Report Spring/Summer 2022: Six Grants Conclude as Five are Funded

Jul 28th, 2022

Six grants wrapped up, as five more are funded. See the impact inside.

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Topics: Announcements

FARF Co-Founder Lynn Frohnmayer Celebrates 80th Birthday

Happy 80th, Lynn Frohnmayer!

Jul 11th, 2022

The occasion marks 40 years devoted to solving Fanconi anemia, the disease that took all three of her daughters.

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Topics: Stories

Fanconi Anemia Research Fund Launches First of Its Kind Cancer Consortium

FARF Launches Cancer Consortium

Jul 11th, 2022

The FA Cancer Consortium aims to streamline cancer care decision-making processes for patients with FA through evidence-based research.

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Topics: Announcements

Three Bone Marrow Transplants, Two Brothers, One Disease: Meet the Johnson Family

Three Bone Marrow Transplants, Two Brothers, One Disease: Meet the Johnson Family

By: Rebecca Johnson | Jul 7th, 2022

We have learned A LOT in the past year. We have learned about FA and the struggles our boys will continue to have. We have learned that the FAmily is amazing and that we are stronger than we imagined.

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Topics: Stories

Violet’s Journey to Diagnosis and Transplant

Violet’s Journey to Diagnosis and Transplant

By: Paige Halverson | Jun 8th, 2022

I know that Violet’s journey will continue, and she will continue to be a rockstar in everything she does. Since diagnosis, the biggest lesson I have learned is to just keep going and have faith.

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Topics: Stories

Scientist Spotlight: Eunike Velleuer

Scientist Spotlight: Eunike Velleuer

May 17th, 2022

Learn about FA clinician and cancer researcher Eunike Velleuer, who is working on preventing and detecting oral cancer in people with FA.

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Topics: Stories