Community News


A Day at the 2019 FAdult Meeting with Mary-Beth

A Day at the 2019 FAdult Meeting with Mary-Beth

By: Mary-Beth Johnson | Oct 18th, 2019

At the FAdult Meeting in Chicago, Mary-Beth (a blogger & adult with FA), took over FARF's Facebook for a day and brought viewers behind the scenes at the meeting.

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Topics: Stories

Gene Therapy in Fanconi Anemia: An Update

Gene Therapy in Fanconi Anemia: An Update

Oct 16th, 2019

What is gene therapy in FA, what do we know now, and what's next?

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Topics: Announcements

European FA Organizations Form Umbrella Group

European FA Organizations Form Umbrella Group

Oct 16th, 2019

FA organizations in Europe are joining together to form a unified European Group.

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Topics: Announcements

Cultivating Wellbeing in Our Lives

Cultivating Wellbeing in Our Lives

Oct 9th, 2019

With a disease like Fanconi anemia, most of our attention is focused on physical health. Mental health is a component that may get overlooked, yet it is crucial to our overall wellbeing.

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Topics: Announcements

A Pursuit in Genetics

A Pursuit in Genetics

By: Anne Starner | Oct 9th, 2019

This summer, I had the honor of working in Dr. Alan D’Andrea’s lab at the Dana-Farber Cancer Institute in Boston. The people who research our disease are just as amazing as the people who have it.

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Topics: Stories

Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia

Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia

Sep 18th, 2019

Research study is open to participants worldwide to advance understanding and treatments for the rare disease Fanconi anemia.

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Topics: Announcements