Community News


Ten of the Best Things about FA Family Camp

Ten of the Best Things about FA Family Camp

Sep 6th, 2018

We asked FA families to share with us some of their favorite moments from 2018’s meeting. As memories were shared, we noticed some common themes that families seemed to appreciate most about camp.

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Topics: Stories

Global Fanconi Anemia Gene Therapy Program Update

Global Fanconi Anemia Gene Therapy Program Update

By: Participating Institutions | Aug 22nd, 2018

Updates on the gene therapy trials open to people with FA on two continents.

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Topics: Announcements

New FA Research Funded

New FA Research Funded

Jul 12th, 2018

​We are excited to fund four new research projects, two targeting the blood problems in Fanconi anemia, and two focusing on understanding cancer in FA.

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Topics: Announcements

Head and Neck Squamous Cell Carcinoma: Developing Guidelines to Maximize Therapeutic Outcomes

HNSCC in FA Meeting

Jun 13th, 2018

Clinical and scientific experts met in Pittsburgh to discuss HNSCC in FA and how to improve prevention and treatment outcomes.

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Topics: Announcements

Dr. Sudhir Borgonha Joins FARF as Translational Science Director

Dr. Sudhir Borgonha Joins FARF as Translational Science Director

Jun 13th, 2018

Dr. Borgonha will lead FA translational science efforts, including the development of a clinical registry and biobank.

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Topics: Announcements

No Longer an Orphan

No Longer an Orphan

By: Sharon Schuman, PhD | Jun 12th, 2018

FA was once an orphan disease that no one knew anything about, except that it was rare, it affected the blood and it was fatal. Thanks to 30 years of research, this is no longer the case.

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Topics: Stories