We have learned A LOT in the past year. We have learned about FA and the struggles our boys will continue to have. We have learned that the FAmily is amazing and that we are stronger than we imagined.
I know that Violet’s journey will continue, and she will continue to be a rockstar in everything she does. Since diagnosis, the biggest lesson I have learned is to just keep going and have faith.
In early 2022, four new grants were awarded to advance research in FA cancer preclinical models, Fanconi Anemia Neurological Syndrome (FANS), and mental health.
I am realizing now that parenting Eli is parenting a young man with two diagnoses that can be life-threatening. There is the FA that looms on the horizon and threatens cancer, and there is depression.