Community News


19th Annual Concert & Wine Raises $22,000

19th Annual Concert & Wine Raises $22,000

Apr 12th, 2018

FARF friend and board member Sharon Schuman held her annual concert and wine benefit for FA research on April 8 in Eugene, Ore. FARF co-founder Lynn Frohnmayer spoke about the future of FA research.

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Topics: Stories

First Joel Walker Scientific Meeting Scheduled for April 9, 2018

First Joel Walker Scientific Meeting Scheduled for April 9, 2018

Feb 1st, 2018

Dr. Robert Ferris of the University of Pittsburgh will chair the meeting of 20+ head and neck experts from around the world.

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Topics: Announcements

Orion Marx Joins the Board of Directors

Orion Marx Joins the Board of Directors

Dec 15th, 2017

We are pleased to welcome longtime FARF supporter and FA parent Orion Marx to the Board of Directors.

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Topics: Announcements

Fanconi Anemia Research Fund Receives Grant to Expand Development Program

FARF Receives Grant

Dec 1st, 2017

The grant will allow FARF to generate greater income to support its mission to find effective treatments and a cure for FA and to provide education and support services to affected families worldwide.

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Topics: Announcements

Joel Walker Scientific Meeting Series Established

Joel Walker Scientific Meeting Series Established

Jul 1st, 2017

A generous bequest from Joel Walker's estate and on-going support from the Walker family make this important series of scientific meetings possible.

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Topics: Announcements

Running for Her Life

Running for Her Life

Apr 21st, 2017

Despite a rare, incurable disease, Amy Frohnmayer Winn ran joyfully through her limited time on earth, making the most of every mile—and every moment.

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Topics: Stories