Forgot your password?
Sign up to access the FA Family Directory
Registration for scientists and researchers coming soon.
More than 250 FA researchers and clinicians gathered in late 2018 to share updates in FA research and clinical care. Here are the key takeaways.
Read More >
Lynn Frohnmayer, FARF co-founder, has lost all three daughters to Fanconi anemia. At the 30th FA Scientific Symposium, she spoke about her family's story and three decades of progress in FA research.
The 30th Symposium featured new and exciting sessions and grant opportunities, inspiring talks by adults with FA, and celebration of progress in FA research and treatments over 30 years.
Mary-Beth Johnson is a foodie and fantastic cook, a wife, sister and daughter, and a self-proclaimed over-sharer. She also lives with Fanconi anemia.
Where were you the day your life changed forever? Do you remember how you felt the moment you knew nothing would ever be the same again?
What is it like to be the sibling of someone with Fanconi anemia? How is life as a sibling influenced by FA?