Community News


Key Takeaways from the 30th Scientific Symposium

Key Takeaways from the 30th Scientific Symposium

Jan 15th, 2019

More than 250 FA researchers and clinicians gathered in late 2018 to share updates in FA research and clinical care. Here are the key takeaways.

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Topics: Announcements

 FARF co-founder speaks at 30th Symposium

FARF co-founder speaks at 30th Symposium

Jan 14th, 2019

Lynn Frohnmayer, FARF co-founder, has lost all three daughters to Fanconi anemia. At the 30th FA Scientific Symposium, she spoke about her family's story and three decades of progress in FA research.

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Topics: Stories

30th Scientific Symposium in Photos

30th Scientific Symposium in Photos

Jan 9th, 2019

The 30th Symposium featured new and exciting sessions and grant opportunities, inspiring talks by adults with FA, and celebration of progress in FA research and treatments over 30 years.

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Topics: Announcements

Heart of Celebration

Heart of Celebration

By: Mary-Beth Johnson | Jan 7th, 2019

Mary-Beth Johnson is a foodie and fantastic cook, a wife, sister and daughter, and a self-proclaimed over-sharer. She also lives with Fanconi anemia.

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Topics: Stories

The Cancer Clock

The Cancer Clock

Dec 10th, 2018

Where were you the day your life changed forever? Do you remember how you felt the moment you knew nothing would ever be the same again?

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The Sibling Journey

The Sibling Journey

By: Nancy Cincotta, LCSW, MSW, MPhil | Dec 7th, 2018

What is it like to be the sibling of someone with Fanconi anemia? How is life as a sibling influenced by FA?

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Topics: Stories